Our son Cody was diagnosed with Fragile X after his daycare told me that he was not a "normal" 2.5 year old.  So, I began to seek out help from his doctors.  I started out [...]

In 1998 and 2001 we had our two daughters. Jessica and Victoria. Jessica showed signs of developmental delays and speech problems, but I was always told she'll be fine. Victoria was right on track developmentally, [...]

No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

Our son, Jackson, is the light of our lives. When we received his diagnosis, we had never heard of Fragile X Syndrome. We have been so fortunate to be connected with other amazing families like [...]

My name is Genia and I am the blessed sister of GeMon aka Money. This young man is one of the most sincere and loving spiritual beings you will ever meet in your life. Through [...]

Evan has always had that something special and unique about him, you could see it in his eyes and his smile long before we ever heard the term Fragile X syndrome. I am so proud [...]

We have an extra special little girl with fragile x. Miss Mili is 3. After a year and a half into feeding, speech, and occupational therapy Mili has come a long way from the baby [...]

My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]

My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]

I really don't know the story that well, my mom could probably share it better, but i wanted to tell it. My mom is the eldest of 4 brothers also the only one that doesn't [...]