No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

Our son, Jackson, is the light of our lives. When we received his diagnosis, we had never heard of Fragile X Syndrome. We have been so fortunate to be connected with other amazing families like [...]

My name is Genia and I am the blessed sister of GeMon aka Money. This young man is one of the most sincere and loving spiritual beings you will ever meet in your life. Through [...]

Evan has always had that something special and unique about him, you could see it in his eyes and his smile long before we ever heard the term Fragile X syndrome. I am so proud [...]

We have an extra special little girl with fragile x. Miss Mili is 3. After a year and a half into feeding, speech, and occupational therapy Mili has come a long way from the baby [...]

My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]

My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]

I really don't know the story that well, my mom could probably share it better, but i wanted to tell it. My mom is the eldest of 4 brothers also the only one that doesn't [...]

Elise is 8 years old and full of life!! She is happy, bright and kind. Elise continues to thrive on her own and with educational/social intervention as needed. She takes her role as sister, cousin, [...]

My son Grayson was diagnosed with Fragile X Syndrome when he was 7 months old. His pediatrician, who is absolutely the most amazing doctor, noticed that he was mildly delayed. She said that she wanted [...]

Our son Mick was diagnosed with FXS a year ago, just before his 2nd birthday. I had never heard of FXS nor was I aware that I carried the gene. Mick is the youngest of [...]

I have 2 grandsons with Fragile X. I'm so very proud of them. PJ just graduated from 8th grade and will be going into high school. Hunter will be going into the 8th grade. They [...]