Opportunities for Families
Visit MyFXResearch Portal to search for opportunities specific to you.
Visit MyFXResearch Portal to search for opportunities specific to you.
Little is known about the early psychosocial and family development of young children with neurodevelopmental disorders. The goal of this study is to partner with families affected by these conditions to better understand children’s individualized strengths and needs.
UC Davis MIND Institute If you have a son with Fragile X syndrome between 36 and 66 months of age, you and your child are invited to participate in a research study being conducted [...]
Georgianna Baker-Gay of Capella University Dear Families, You are invited to take part in a Fragile X syndrome (FXS) study for racial and ethnic minority children and families by taking an online survey. The [...]
University of Maryland student Amanda Catchings Purpose of Study To better understand the emotional experiences and experiences with support systems of mothers who are carriers of Fragile X syndrome and have had a child [...]
This research study is looking at the relationship between sensory processing skills (response to sensory experiences) and the development of daily life skills (adaptive skills).
Carolina Institute for Developmental Disabilities (CIDD) at the University of North Carolina at Chapel Hill and the Center for Interdisciplinary Brain Sciences Research (CIBSR) at Stanford University The Carolina Institute for Developmental Disabilities (CIDD) [...]
the University of Michigan Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on [...]
UC Davis MIND Institute We are interested in learning if a behavioral treatment called Parent- Implemented Language Intervention will support spoken language development in boys with Fragile X syndrome (FXS). This study might be [...]
NIMH This research seeks to understand how protein formation in the brain is affected in Fragile X syndrome (FXS). Researchers will measure the rate at which the brain makes proteins (protein synthesis) and will [...]
Alcobra, Ltd. Alcobra is pleased to let you know about a new clinical trial that is currently underway and recruiting patients with Fragile X syndrome. The study is seeking male and female participants between [...]
Seattle Children's Hospital Does someone you love have Fragile X syndrome (FXS)? If so, please know that we are currently enrolling individuals with FXS between 15 and 55 years of age to participate in a [...]
Neuren Pharmaceuticals Neuren Pharmaceuticals is pleased to inform you of an opportunity to participate in a clinical trial for adolescents and adults with Fragile X syndrome. This clinical trial is testing an investigational medication, NNZ-2566, [...]
Alcobra Ltd will be conducting a clinical trial of Metadoxine Extended Release (MDX) in adults and adolescents, 15 to 55 years old, with Fragile X syndrome. The planned Phase IIb MDX clinical trial will be a multi-center, randomized, placebo-controlled study, conducted primarily in the US. The study is supported by positive data collected from multiple earlier animal studies using metadoxine. Results from these studies demonstrated significant improvement in behavioral and cognitive outcomes in mice based on testing and performance of memory, learning, and social interaction.
We are recruiting a small group of mothers and their children with Fragile X syndrome, between the ages of 10- and 17-years, to participate in a pilot study of a parent-implemented language intervention. The goal of this project is to teach each mother strategies which can be used to support spoken language development in their child with Fragile X syndrome.
MIND Institute University of California, Davis If you have a son with Fragile X syndrome or a son with autism between 15 and 22 years of age, you and your son are invited to [...]