Stanford Fragile X Research

The Translational Applied Behavior Analysis Laboratory at Stanford University is seeking boys with FXS to participate in a study evaluating behavioral treatments for disruptive behaviors (e.g., aggression, self-injury, property destruction).

Who can participate?

  • Boys with Fragile X syndrome ages three to ten years inclusive who show disruptive behaviors.

What participation involves:

  • The study duration is 16 weeks and involves an initial in-home assessment to evaluate your child’s behavior, followed by daily to weekly sessions of behavior therapy conducted via telemedicine in your home with a Board Certified Behavior Analyst.
  • Parents will be loaned an iPad for the study duration and will be shown how to use the video-conferencing software.

What are the benefits of participating?

  • Parent training to help manage your child’s behavior.
  • Summary of your child’s behavioral assessment.
  • Potential reduction in your child’s disruptive behavior.
  • Potential improvement in communication skills.
  • An honorarium of $100 for participation.

This project is directed by Dr. Scott Hall and has been approved by the Stanford University Institutional Review Board.

To determine eligibility for the study, please complete the questionnaire available by clicking here or by typing the following address directly into your web browser: https://redcap.stanford.edu/plugins/hall_project/portal/.

Thank you for you time!

Further information about the study, contacting the study coordinator, Katerina Monlux at 650-736-0591 or email her at kmonlux@stanford.edu.

To print a flyer regarding this study, download the Stanford Research Flyer.