Whether you’re a newly-diagnosed family in the fragile X community or have been living with the diagnosis for several years, please join us as we speak with Brenda Finucane (Geisinger, ADMI Associate Director & Professor) about the nuts and bolts of Fragile X inheritance.
Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2500 each through the Summer Student Fellowship Research Fund.
I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, encouraged him to brush his own teeth, tried different toothbrushes and toothpaste. I needed Bonnie.
NJ/NY Moms' Night Out Date: June 1, 2017 Time: 7:00 PM - 9:00 PM Location: Cheesecake Factory at the Mall at Short Hills 1200 Morris Turnpike Short Hills, NJ 07078 Near Macy's, on the north [...]
Fragile X expert, Dr. Elizabeth Berry-Kravis, presented to a great crowd and discussed issues our loved ones with Fragile X face in puberty and adulthood.
Jacky's X-Men, along with Fragile X Northern California, will be raising awareness on 7/29 at Avaya Stadium! We will be joined by Pacific Autism Center for Education, Hope Services and several other non-profits to raise awareness!
We were invited to the New York Stock Exchange to ring the opening bell, giving us the amazing chance to raise awareness for Fragile X.
Ovid Therapeutics A Phase 1 Single Dose PK Study in Adolescent Subjects With Fragile X Syndrome or Angelman Syndrome The trial is a Phase 1 Single Dose PK [...]
On March 23, the Fragile X Resource Center of Missouri hosted a business meeting for all members of the group. Roughly 20 individuals enjoyed dinner, followed by the business of the group. Events since the last meeting were reviewed, along with upcoming events and opportunities. We enjoyed catching up with other following the conclusion of our business.
UC Davis MIND Institute [mpc_image preset="preset_2" image="11147" margin_divider="true" margin_css="margin-bottom:15px;" image_size="full" force_fullwidth="true" image_opacity="100" effect="none" image_hover_opacity="100" overlay_background="rgba(255,255,255,0.35)" overlay_enable_lightbox="true" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="900" animation_in_delay="300"] Now Recruiting Research Participants: Combining Lovastatin and a Parent-Implemented Language Intervention in [...]
Ladies' Night Out! Join our St. Louis group for painting, snacks and fun!
Researchers at the University of Alberta’s Department of Pediatrics and Stollery Hospital are completing a study, looking at memory in children with a neurodevelopmental disorder or typical development. [...]
National Institutes of Health A Study Funded by the National Institutes of Health The purpose of this research is to explore whether certain types of intellectual or cognitive tests are reliable, valid and [...]
Join Texas Fragile X Association for their annual awareness walk!
Congress is moving forward on our two key asks: Reps. Harper and Engel have sent their cosigned letter to the House Appropriations Committee asking for support for research at [...]
