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So far NFXF has created 489 blog entries.

Planning for Emergency Events at School

By |2023-03-13T14:11:50-04:00Apr 12, 2017|Education, Treatment and Intervention|

With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child's IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.

Western Massachusetts Hosts Rollerskating Event

By |2017-04-07T11:30:42-04:00Apr 7, 2017|Community Support Network, Western Massachusetts|

[mpc_image preset="preset_2" image="27485" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]On April 2, Western Massachusetts Fragile X hosted a rollerskating event for local families. The event was private, and to ensure [...]

Will You Do Anything for Fragile X?

By |2021-02-03T10:14:47-05:00Apr 4, 2017|AnythingForFragileX|

Someone you care about lives with Fragile X. That person is your child, grandchild, brother, sister, nephew, cousin, friend, classmate or co-worker. That’s why you’re here. Today, we’re asking you if you would do #AnythingForFragileX!

Passion for Community and Support Key to Success for Annual Conference

By |2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

CT: 10th Annual Conference

By |2017-08-02T13:11:24-04:00Feb 12, 2017|Central Connecticut Events, Events|

Fragile X Society of Connecticut 10th Annual Conference Date: October 21, 2017 Time: Location: University of Connecticut Health Center 263 Farmington Avenue Farmington, CT 06030 Hosts: Fragile X Society of Connecticut Details Save [...]

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