The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.
The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.
Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.
An update on our advocacy efforts, including Advocacy Day 2022 and key legislation we are currently supporting.
A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.
Meet an xtraordinary employee, Zach, who turned his love of animals into his perfect job at the Monterey Zoo.
A $4 million cooperative agreement to “Characterize the Natural History of Fragile X Syndrome to Inform the Development of Intervention and Outcome Measures” was awarded to Dr. Elizabeth Berry-Kravis of Rush University Medical Center by the Centers for Disease Control and Prevention (CDC).
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.
We designed several Fragile X awareness yard signs so you can choose one that serves you best. Each are printed on-demand and shipped directly to you with everything you need to display them in your yard for all of July or even longer if you choose.
Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS). She covers everything from brief descriptions of the Fragile X-associated disorders, such as FXTAS and FXPOI, to details about FXS.
Dr. Craig Erickson answers listener questions on medications for Fragile X syndrome.
Two important videos from Dr. Craig Erickson who discusses COVID-19 vaccines for individuals living with Fragile X premutations and full mutations, plus a second video on medications and Fragile X.
Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
What is the President's budget, is it important for Fragile X advocacy, and how does Fragile X research get funded? These are all answered here.
