Joel Richter, PhD, professor of molecular medicine(Photo Courtesy of UMassMedNow) Scientists at UMass Medical School have shown that knocking out a gene important for messenger RNA (mRNA) translation in neurons restores memory deficits [...]
Yes, that's correct Fragile X syndrome was mentioned when Mike asked for "Fragile for $400" on Thursday nights episode of Jeopardy. http://youtu.be/Ujr5jhZgzvY
“The walk just keeps getting bigger and better every year!” This was a comment made by the mom in one of our families who drives more than three hours to attend the Walk for Faces of Fragile X in Kansas. She was particularly excited this year because her brother and his family joined them at the walk. That’s what it’s all about: families and their communities coming together to raise awareness, foster acceptance and see that we are not alone on this sometimes daunting journey.
The NFXF is always hard at work doing everything we can to help the Fragile X community. You know that and we do, too! But do you know who's really making this all happen? That’s [...]
Colorado Children's Hospital We invite your child with Fragile X syndrome to join in the foXtail study This invitation tells you a more about the study We want to see if a new medication, [...]
UC Davis MIND Institute We are actively recruiting children diagnosed with FXS between 24-60 months old to participate in a groundbreaking study! We have preliminary evidence that sertraline, a selective serotonin re-uptake inhibitor (SSRI) [...]
Kosair Charities Pediatric Clinical Research Unit at the University of Louisville The Kosair Charities Pediatric Clinical Research Unit at the University of Louisville invites adolescents between the ages of 14 and 17 with Fragile [...]
The NFXF Board of Directors accepted the resignation of Robby Miller at its regular board meeting in Detroit on October 12, 2013. Miller will continue to work at the Foundation through December 31, 2013. Have [...]
Meet Jeffrey Cohen, new interim executive director of the National Fragile X Foundation. Cohen, who succeeds Robby Miller, has a long association with the Foundation. He joined the NFXF Board of Directors in 1996 and [...]
FOR IMMEDIATE RELEASE Ted Coutilish (734) 320-7981 tcoutilish@fragilex.org www.fragilex.org (Walnut Creek, CA, October 12, 2013) The National Fragile X Foundation Board of Directors has named Jeffrey Cohen as interim executive director. “We are fortunate Jeff [...]
Dr. Jörg Richstein, Chairman of the Fragile X support group in Germany, stopped by our office to say hello just a few weeks ago! Today, we recognize our friends and partners [...]
Neuren Pharmaceuticals (NEU) has received approval from the US Food and Drug Administration to conduct a Phase 2 clinical trial of a drug to treat patients with Fragile X syndrome (FXS), the company recently announced. [...]
There is something to be said about unique thinking, especially when fundraising can be so challenging. Creating a signature event in your community takes time, patience and creativity. Thankfully, our group leaders have all of those qualities, including the Fragile X Resource Center of Missouri who just held their 8th Annual Mouse Races. Yes, you read that correctly: mouse races!
