Our Advisors
The NFXF Scientific & Clinical Advisory Committee The NFXF's Scientific and Clinical Advisory Committee (SCAC) is a group of clinical and research professionals who are thought leaders in the Fragile X field. [...]
27
06, 2023
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17
05, 2023
Aging in Fragile X Syndrome — Webinar
Dr. Berry-Kravis presents a one hour Q&A about what we’ve learned from the FORWARD data on aging for individuals living with Fragile X syndrome.
28
04, 2023
The Fragile X Premutation
The Fragile X Premutation Traditionally, a carrier of a genetic condition is defined as a person who inherits an altered form of a gene but is asymptomatic or not at risk for nor has [...]
28
03, 2023
My Experience at Advocacy Day
Jaleesa Holden, NFXF Communications Manager, shares her experience as a first-time advocate at NFXF Advocacy Day 2023.
12
03, 2023
Adulthood & Fragile X Syndrome
Adulthood and Fragile X Syndrome Challenges faced by adults with Fragile X syndrome — and their caregivers — may include cognitive, learning, communication, and physical and medical issues. Difficulties in adulthood often begin with [...]
24
02, 2023
2023 Advocacy Day Asks
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine
22
11, 2022
Latent Class Analysis Identifies Distinctive Behavioral Subtypes in Children with Fragile X Syndrome
FORWARD // Among the different models resulting from the latent class analysis, a 5-class solution yielded the most clinically meaningful pharmacotherapy-independent behavioral subtypes.
20
10, 2022
Mosaicism in Fragile X Syndrome
Consensus of the Fragile X Clinical & Research Consortium Mosaicism in Fragile X Syndrome Reading Time: 18 min.—|—Last Updated: Oct. 2022—|—First Published: Oct. 2022—|—Download PDF Mosaicism Size Mosaicism Methylation [...]
21
09, 2022
Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives
Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives By Reymundo Lozano, Talia Thompson, Jayne Dixon-Weber, Craig A. Erickson, Elizabeth Berry-Kravis, Sara Williams, Elizabeth Smith, Jean A. Frazier, Hilary [...]
26
07, 2022
Announcing Our 2022 NFXF Awardees
Our 2022 NFXF awards are in! Learn more about each award and about each of our awardees.