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21 07, 2009

NIH Issues Research Plan on Fragile X Syndrome and Associated Disorders

By |2009-07-21T10:55:56-04:00Jul 21, 2009|News Reports and Commentaries|Comments Off on NIH Issues Research Plan on Fragile X Syndrome and Associated Disorders

The National Institutes of Health has developed a research plan to advance the understanding of Fragile X syndrome and its associated conditions, Fragile X-associated tremor/ataxia syndrome and Fragile X-associated primary ovarian insufficiency. Fragile X syndrome [...]

29 05, 2017

Advocacy

By |2019-12-13T10:48:12-05:00May 29, 2017|Comments Off on Advocacy

On National Fragile X Foundation leads an advocacy program to advance research funding for Fragile X and programs to provide better lives and opportunities for individuals living with Fragile X and other intellectual and [...]

9 12, 2019

The NIH Fragile X Research Plan

By |2019-12-09T11:43:06-05:00Dec 9, 2019|Research|Comments Off on The NIH Fragile X Research Plan

The NIH just released their Fragile X Research Plan, which identifies research priorities and aims to coordinate research efforts. We have pulled a few key excerpts.

30 04, 2019

Fiscal Year 2020 NICHD Funding Letter

By |2019-04-30T14:18:37-04:00Apr 30, 2019|Advocacy, Research|Comments Off on Fiscal Year 2020 NICHD Funding Letter

We work closely with several groups to help on common public policy and funding goals. These partnerships are key to our impact and an important leg in our advocacy stool. Like we say, Together, We're Stronger. One of these key partnerships is the Friends of the NICHD. The NICHD is the National Institute for Child Health and Human Development. It is one of the institutes at the National Institutes of Health (NIH) and funds most of the Fragile X research at NIH. The Friends work together to support, overall, the funding level for NICHD, which flows down to each of the research areas, including Fragile X.

24 03, 2017

Advocacy Update – NIH and CDC Funding

By |2017-03-24T12:26:23-04:00Mar 24, 2017|Advocacy|Comments Off on Advocacy Update – NIH and CDC Funding

We are barely three weeks out from our 2017 NFXF Advocacy Day on the Hill and our asks are already becoming more relevant. The President's Fiscal Year 2018 Budget Blueprint was released March 16. This document summarizes, at a high-level, the dollar amounts and initiatives/changes proposed in his budget. It is not his budget – that is expected in May. However, it signals his priorities, which include a funding cut and reorganization at NIH

23 09, 2014

NIH awards $35 Million for Fragile X Research

By |2014-09-23T16:26:26-04:00Sep 23, 2014|2014, Advocacy, In the News|Comments Off on NIH awards $35 Million for Fragile X Research

Three research teams receive funding over next five years The National Institutes of Health (NIH) is making funding awards of $35 million over the next five years to support the Centers for Collaborative Research in [...]

16 02, 2018

Help Guide Fragile X Research at NIH

By |2018-02-16T17:40:50-05:00Feb 16, 2018|Advocacy, Research|Comments Off on Help Guide Fragile X Research at NIH

Last year, the National Institutes of Health (NIH) funded $46 million in Fragile X research, an amount that has trended upwards in the past few years. Over the years, they have funded hundreds of millions [...]

31 07, 2013

NIH Launches Neurological Drug Development Projects Including Fragile X Syndrome

By |2013-07-31T10:32:38-04:00Jul 31, 2013|News Reports and Commentaries|Comments Off on NIH Launches Neurological Drug Development Projects Including Fragile X Syndrome

The National Institutes of Health (NIH) has launched three projects that will focus on development of therapeutics, including one project for Fragile X syndrome. "We are excited about the opportunity to apply cutting-edge science to [...]

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