Studies and Clinical Trials

///Studies and Clinical Trials
Studies and Clinical Trials 2019-02-08T10:55:18+00:00

Research Recruitment for Studies and Clinical Trials

The National Fragile X Foundation is committed to helping advance new and improved treatments and interventions for Fragile X-associated Disorders.

  • If you are a researcher who wishes to learn how the NFXF can assist you with recruitment, please keep reading.
  • If you are a family member and are interested in finding studies and trials you or your loved one can participate in, please use our search tool below.  If you have any questions about a specific study, please use the contact information listed on the clinic’s announcement.

For Clinical Trials

All companies/professionals requesting assistance with Research Recruitment for a clinical trial (medication or therapy), must have their trial reviewed and approved by the NFXF Clinical Trials Committee (CTC). The CTC is a team of Fragile X professionals and NFXF staff who function under confidential agreements. The CTC highly recommends that any company/team developing a trial, request to meet with the CTC early in the development stage of their trial. Email Jayne Dixon Weber jayne@fragilex.org for more information. Once the trial has been approved by the CTC, the NFXF will provide the list of Frequently Asked Questions (FAQs) for the company to complete, and will proceed with the website posting.

For Studies/Surveys (non-therapy/medication clinical trials)

All organizations requesting assistance with Research Recruitment for their study or survey must have it reviewed by the NFXF, according to the guidelines set out by the NFXF Scientific & Clinical Advisory Committee. Please email research@fragilex.org

Services

The NFXF offers a fee-based service for Research Recruitment which can include, but is not limited to: multiple meetings with the CTC, website postings, social media postings, emails, print mailings, webinars, and review of written materials. The NFXF offers a complimentary first meeting with the CTC and listing on the website.

Questions?

Please email research@fragilex.org

SEARCH CLINICAL TRIALS

STUDY TYPE
CONDITION
SEARCH BY LOCATION
TRAVEL CONSIDERATIONS
SEARCH BY AGE
SEARCH BY SEX

Results

RESEARCH OPPORTUNITY
STUDY TYPE
LOCATION
CONDITION
AGE
SEX
STUDY TYPE
Study
LOCATION
Arizona, California, Pennsylvania
CONDITION
Fragile X Syndrome
AGE
Child
SEX
All
STUDY TYPE
Study
Home Only
CONDITION
Fragile X Syndrome
AGE
Child
SEX
Male
STUDY TYPE
Study
LOCATION
Massachusetts
CONDITION
Fragile X Syndrome
AGE
Child
SEX
All
STUDY TYPE
Trial
LOCATION
Massachusetts
CONDITION
Fragile X Syndrome
AGE
Adult 18+
SEX
Male
STUDY TYPE
Trial
LOCATION
California, Colorado, Connecticut, District of Columbia, Georgia, Illinois, Massachusetts, Missouri, New York, Ohio, Pennsylvania, Tennessee, Texas
CONDITION
Fragile X Syndrome
AGE
Child
SEX
All
STUDY TYPE
Study
LOCATION
Illinois
CONDITION
Premutation Carrier
AGE
Child, Adult 18+
SEX
Male
STUDY TYPE
Trial
LOCATION
Arizona, California, Colorado, Georgia, Illinois, Maryland, Massachusetts, New Jersey, New York, North Carolina, Ohio, Oklahoma, Pennsylvania, South Carolina, Washington
CONDITION
Fragile X Syndrome
AGE
Child
SEX
All
STUDY TYPE
Study
LOCATION
California
CONDITION
Premutation Carrier
AGE
Adult 18+
SEX
Male
STUDY TYPE
Study
LOCATION
Maryland
CONDITION
Fragile X Syndrome
AGE
Adult 18+
SEX
Male
STUDY TYPE
Trial
LOCATION
Arizona, California, Colorado, Illinois, Maryland, Ohio, Pennsylvania, Tennessee
CONDITION
Fragile X Syndrome
AGE
Child, Adult 18+
SEX
Male
STUDY TYPE
Study
Home Only
CONDITION
Fragile X Syndrome
AGE
Child, Adult 18+
SEX
All
STUDY TYPE
Trial
LOCATION
Ohio
CONDITION
Fragile X Syndrome
AGE
Adult 18+
SEX
All
STUDY TYPE
Study
LOCATION
California, South Carolina, Tennessee
CONDITION
Fragile X Syndrome
SEX
All
STUDY TYPE
Trial
LOCATION
Alberta, Quebec
CONDITION
Fragile X Syndrome
AGE
Child, Adult 18+
SEX
All
STUDY TYPE
Survey
Home Only
CONDITION
Premutation Carrier
AGE
Adult 18+
SEX
All
STUDY TYPE
Trial
LOCATION
Canada, Alberta, British Columbia, Manitoba, New Brunswick
CONDITION
Fragile X Syndrome, FXTAS, FXPOI, Premutation Carrier, Non-Carrier
AGE
Child, Adult 18+
SEX
All
STUDY TYPE
Study
LOCATION
Indiana
CONDITION
Premutation Carrier
AGE
Adult 18+
SEX
Female