Studies and Clinical Trials

///Studies and Clinical Trials
Studies and Clinical Trials 2018-12-07T12:31:15+00:00

Research Recruitment for Studies and Clinical Trials

We post all clinical trial opportunities that meet our General Guidelines (as established by our Scientific & Clinical Advisory and Ethics committees).

We also periodically assist with research recruitment through a variety of means including print mailings, emails, and Facebook postings. This is a fee-based service designed to promote the advancement of Fragile X research on behalf of university-based researchers, pharmaceutical companies, and others who meet our general guidelines, while compensating the NFXF for the associated staff time and materials expense.

If you are a family member and have any questions about a specific study, please use the contact information listed on the clinic’s announcement. If you are a professional and have any questions about how the NFXF can assist you with recruitment, please email

Studies and Clinical Trials Filter

senior male headshot

Longitudinal Study of Brain and Cognition in Fragile X Premutation Carriers (TRAX)

Researchers at the UC Davis MIND Institute are examing changes in the brain and cognition associated with aging, in males with the Fragile X premutation compared to those without....
Zynerba logo

Clinical Trial CONNECT-FX: ZYN002 Gel

This study will evaluate the efficacy and safety of ZYN002, a clear cannabidiol (CBD) gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral s...
Fragile X adult and Tracy Stackhouse

Online Survey: Preferences for the Use of Medical Records in Research

Researchers at Our Fragile X World are inviting young adults with the full mutation of Fragile X between the ages of 18 and 40 to take part in a new survey. The survey asks about what things ma...
Women with Fragile X

Survey: Women with Fragile X Syndrome

Fragile X syndrome is the most common cause of inherited intellectual disability. The clinical variability of this syndrome is wide, particularly in females who initially were thought to be unaffected...

Online Interview Market Research Opportunity

Looking for: Parents/caregivers of children (males and females) with the full mutation of Fragile X syndrome between the ages of 3-17 years old. What you will do: Online interview – requires a c...

Research: Did you grow up in Iowa, or know someone who did?

Are you, or someone you know, a carrier of the FMR1 premutation? If so, you may be eligible for our study of language and social characteristics in fragile X syndrome and the FMR1 premutation! Our...