Studies and Clinical Trials

///Studies and Clinical Trials
Studies and Clinical Trials 2018-10-18T12:44:43+00:00

Research Recruitment for Studies and Clinical Trials

We post all clinical trial opportunities that meet our General Guidelines (as established by our Scientific & Clinical Advisory and Ethics committees).

We also periodically assist with research recruitment through a variety of means including print mailings, emails, and Facebook postings. This is a fee-based service designed to promote the advancement of Fragile X research on behalf of university-based researchers, pharmaceutical companies, and others who meet our general guidelines, while compensating the NFXF for the associated staff time and materials expense.

If you are a family member and have any questions about a specific study, please use the contact information listed on the clinic’s announcement. If you are a professional and have any questions about how the NFXF can assist you with recruitment, please email

Studies and Clinical Trials Filter

Fragile X adult and Tracy Stackhouse

Online Survey: Preferences for the Use of Medical Records in Research

Researchers at Our Fragile X World are inviting young adults with the full mutation...
Women with Fragile X

Survey: Women with Fragile X Syndrome

Fragile X syndrome is the most common cause of inherited...

Online Interview Market Research Opportunity

Looking for: Parents/caregivers of children (males and females) with the...

Research: Did you grow up in Iowa, or know someone who did?

Are you, or someone you know, a carrier of the...

Survey: Parent decision-making to inform Fragile X syndrome clinical drug trials

New survey study to investigate the decision-making process among parents...

Study: FX-LEARN – Language Learning in Children with FXS

AFQ056 for Language Learning in Children with Fragile X Syndrome...