The NFXF Blog
September Fragile X Fundraisers Review
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]
From the Executive Director: The New CDC Grant Funding for the FXCRC
Robert Miller, Executive Director of the NFXF I don't need to tell you that Fragile X syndrome can have a big impact on families! But exactly what is that impact and what can [...]
Our Fragile X World adds over $7,000 to NFXF
We've previously announced Our Fragile X World through our social media accounts, our Fragile Xtras e-newsletter and the NFXF Quarterly. Our Fragile X World is a community of families and researchers dedicated to using survey [...]
2nd Annual Hat Party
National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing! The Northern California [...]
$2.2 Million Grant To Enhance Public Health Knowledge About Fragile X Syndrome
From the New York State OPWDD press release (STATEN ISLAND) The New York State Office for People With Developmental Disabilities' (OPWDD) Institute for Basic Research in Developmental Disabilities (IBR) has been selected to receive a [...]
Spotlight Group: Fragile X Families of SW Chicago
The Fragile X Families of SW Chicago is a newly formed and very active parent support group headed by LINKS Leader, Missy Zolecki. Missy and her husband, Mark have been married for almost 13 years. [...]
Boy to a man Jermaine smith
Jermaime is now 23 he has a job and love to socialize. He has many friends, love talking on the phone and going out. He is the the oldest of four sons. He is loved [...]
Every body knows Jermaine and Jamie
Jermine and jamie grow up to be such a wonderful young men 23 and 18 both love church and love to socialize every where we they both know someone. They are both loved by two [...]
My Extra Special Day
I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]
Focus on Fundraisers: July
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]