Opportunities for Families
Visit MyFXResearch Portal to search for opportunities specific to you.
Visit MyFXResearch Portal to search for opportunities specific to you.
Seattle Children's Hospital Does someone you love have Fragile X syndrome (FXS)? If so, please know that we are currently enrolling individuals with FXS between 15 and 55 years of age to participate in a [...]
Neuren Pharmaceuticals Neuren Pharmaceuticals is pleased to inform you of an opportunity to participate in a clinical trial for adolescents and adults with Fragile X syndrome. This clinical trial is testing an investigational medication, NNZ-2566, [...]
Alcobra Ltd will be conducting a clinical trial of Metadoxine Extended Release (MDX) in adults and adolescents, 15 to 55 years old, with Fragile X syndrome. The planned Phase IIb MDX clinical trial will be a multi-center, randomized, placebo-controlled study, conducted primarily in the US. The study is supported by positive data collected from multiple earlier animal studies using metadoxine. Results from these studies demonstrated significant improvement in behavioral and cognitive outcomes in mice based on testing and performance of memory, learning, and social interaction.
We are recruiting a small group of mothers and their children with Fragile X syndrome, between the ages of 10- and 17-years, to participate in a pilot study of a parent-implemented language intervention. The goal of this project is to teach each mother strategies which can be used to support spoken language development in their child with Fragile X syndrome.
MIND Institute University of California, Davis If you have a son with Fragile X syndrome or a son with autism between 15 and 22 years of age, you and your son are invited to [...]
University of Newcastle Genetic disorders in children: An assessment of parental coping strategies and positive growth Following on from our earlier study of how parents disclose a diagnosis of Fragile X syndrome to their [...]
We are searching for men who are carriers of the Fragile X premutation between the ages of 40 and 69 to participate in a longitudinal UC Davis research project, studying changes in brain and cognition associated with aging. For men who have not yet been tested, FMR1 DNA testing is completed to help determine eligibility for the study.
Lindsey Stobie, Masters candidate in the Genetic Counseling Program at Brandeis University Do you have a daughter with Fragile X syndrome? I am a graduate student in the Genetic Counseling Program at Brandeis University. [...]
Roche We are studying an experimental medication for Fragile X syndrome in children and adolescents. We hope to learn if this experimental medication is safe, how well your body manages the medication (tolerability), how [...]
Colorado Children's Hospital We invite your child with Fragile X syndrome to join in the foXtail study This invitation tells you a more about the study We want to see if a new medication, [...]
UC Davis MIND Institute We are actively recruiting children diagnosed with FXS between 24-60 months old to participate in a groundbreaking study! We have preliminary evidence that sertraline, a selective serotonin re-uptake inhibitor (SSRI) [...]
Kosair Charities Pediatric Clinical Research Unit at the University of Louisville The Kosair Charities Pediatric Clinical Research Unit at the University of Louisville invites adolescents between the ages of 14 and 17 with Fragile [...]
Waisman Center at the University of Wisconsin-Madison The Waisman Center at the University of Wisconsin-Madison is recruiting boys with Fragile X syndrome for a study on language development. Looking For Boys should be between [...]
Stanford Center for Integration of Research on Genetics and Ethics HELP EXPLORE THE ETHICAL, LEGAL AND SOCIAL IMPLICATIONS OF NEW PRENATAL GENETIC TESTS WITH THE STANFORD UNIVERSITY FORUM ON BIOMEDICAL ETHICS The INVEST forum [...]
UC Davis MIND Institute Cognitive Training for Fragile X Syndrome We are conducting a study to determine if a computer-based and game-oriented training program will enhance the working memory skills of children and adolescents [...]