Get to Know Your Local Firefighters
Getting to know your local firefighters can help you and your children with Fragile X syndrome in so many more ways than you think. Read about how to engage with them and how it will help your family.
Behavior and Fragile X Syndrome
When discussing FXS and behavior, the focus should be on the whole person. Some behaviors may be a result of the condition, of which many are positive.
How an Adaptive Physical Education Class Should Be “Run”
An adaptive physical education class like this one set up in your school would be a wonderful program that every student could benefit from.
Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences
It is important to note that it is more common for a child to be diagnosed with ASD and then to receive an additional diagnosis of FXS.
“Happy Birthday” Meltdowns and Other Behavioral Conundrums
“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.
Insight on Evidence-based Medical and Therapeutic Intervention
A discussion for parents of children with special developmental needs about evidence, consensus and anecdotal-based interventions.
Understanding the Fragile X Learning Style for Better Results
We often remind fellow interventionists and educators time and time again about the many unique aspects of Fragile X syndrome as well as the resources available online and in print.
My Child Won’t Answer Questions!
Direct questions are typically the way we try to engage people in conversation. For children with FXS, we need to learn other strategies. It is critical to understand why it is so difficult for children with FXS to understand and respond to these questions, before we get to the how of getting answers.
Behavior Modification in the Classroom
Watching a student with FXS struggle is difficult when their behavior is affected by those characteristics that make up the Fragile X phenotype.
How to Encourage Play — and Why Itʼs So Critical for Your Child
One of the common sites we encounter when visiting a child's home is a play area chock-full of every toy known to man, yet they won’t play with any of them. This exasperation is likely familiar to many of you.
Is Your Child’s Behavior a Manifestation of Their Disability?
Before school authorities consider suspension and possible expulsion, they need to determine whether threatening someone may have been the only way that the person with Fragile X syndrome could express the gravity of their personal discomfort.
Reading, Writing, and Behavior?
Best practice for those affected with FXS means providing a learning environment that allows them to access the curriculum in ways that minimize their disruptive behaviors.
Strategies for Day-to-Day Life
Mouse and Tracy present day-to-day strategies they've drawn from their evidenced-based practice and knowledge of the neurocognitive development of children with Fragile X syndrome.
Life: A Series of Transitions
I realized when my son Ian was just 4 years old that he had difficulty with transitions. I had never thought about transitions being difficult. You just did them - you didn’t think about it. Well, with Ian, I started thinking about them. I still do to this day. I quickly learned I had to allow plenty of time for everything, arrive early to events, set up schedules and routines, take time for transitioning back home—and that was just the beginning.