Action Alert- Protect the Department of Education to ensure continued protections for all students, especially members of the Fragile X community.
Advocating from home is a key part of ensuring continued support for individuals with Fragile X. Let’s work together to make our voices heard!
The Congressionally Directed Medical Research Program could face a 57% reduction in funding with the proposed continuing resolution.
Action Alert- Advocate for Medicaid protection and the Fragile X community.
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors shares his experience at the 2024 NFXF Advocacy Day.
Announcing FY 2024 federal research funding opportunities across six award categories available for all Fragile X-associated conditions and disorders.
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
PureTech Health has been awarded a DOD grant of up to $11.4 million from the DOD for their trial of LYT-300, oral formulation of allopregnanolone, in people with Fragile X-associated tremor/ataxia syndrome (FXTAS).
The NFXF is one of 215 organizations urging lawmakers to support the Accelerating Kids’ Access to Care Act. Every child deserves the best care—regardless of who they are, where they live, or their family’s income.
Read and share the first edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Register now to join other rare disease advocates for meetings between August 7th - 18th. Sign up today for Rare Across America!
Jaleesa Holden, NFXF Communications Manager, shares her experience as a first-time advocate at NFXF Advocacy Day 2023.
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine
