My daughter who is now 2 and a half started showing signs of being a bit different and an early age. At 8 months I decided to start looking into things myself. Doing research and [...]

Meet Jayson he is 19 going on 20 full mutation and none verbal. We were a slow in getting a proper diagnosis for him. Doctors gave us everything under the sun, until one day at [...]

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]

In the spring of 2003, Parker (then 3 1/2) & Allison (7 mo) were diagnosed with Fragile X. In many ways, the diagnoses greatly changed who we are. We went from a family who had [...]

Jodi has always had a love of paper... coloring, drawing, worksheets and creating notes and letters to pass out to people she knows. One day when she was in elementary school we watched her quickly [...]

We were just another family saying "Fragile WHAT?" when our son Andrew was diagnosed with Fragile X syndrome back in 2002, three months before his 2nd birthday. After his diagnosis, many other carriers were discovered [...]

Patrick, 19 non verbal, affected, full mutation with sister, Kelley, 17, full mutation at the beach last summer. This picture involves one of Patrick's favorite things to do with his family. We go to Cape [...]

Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]

Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]

When our son Jackson was diagnosed with Fragile X Syndrome before his third birthday, we went through many emotions. It took awhile to accept that "God doesn't give you anything you cannot handle" and "Everything [...]

My name is Winston and I'm 6 years old. While my family gives me lots of presents for Christmas, I most enjoy loving on my younger brother, Spencer. It is the one gift I can [...]

We found out our oldest child Jacob had Fragile X syndrome 3 days after his 3rd birthday in October of 2003. Shortly afterward we discovered his little sister Samantha had the full mutation too... she [...]

Josh is a 17 year old, happy and charming young man... one of the kindest and most compassionate teenagers I have ever known. He is severely affected with Fragile X syndrome and Autism and I [...]

"Nothing great in the world has been accomplished without passion" ~ Hegel Darienne has a passion for dance. She began dancing at 4 years old and danced for 15 years, taking classes in ballet, tap, [...]