Gramma's FX Baby

By |2011-06-30T20:58:50-04:00Jun 30, 2011|Faces of Fragile X|

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

Gramma’s FX Baby

By |2017-07-31T15:33:34-04:00Jun 30, 2011|Faces of Fragile X|

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

Our Blessing

By |2017-07-31T15:33:33-04:00Jun 30, 2011|Faces of Fragile X|

This is Caden. Or to us "Little Bit". Caden may be little and cute but he sure leaves a huge impact on people. Words can't explain what a blessing Caden is to us. God has [...]

Cheech & Chong

By |2017-07-31T15:33:32-04:00Jun 30, 2011|Faces of Fragile X|

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

Cheech & Chong

By |2011-06-30T19:26:08-04:00Jun 30, 2011|Faces of Fragile X|

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

Two Sisters

By |2021-08-20T12:52:09-04:00Jun 30, 2011|Faces of Fragile X|

This is a wonderful picture of me and my sister Marie DeBernardis, who came to see me over Thanksgiving of last year.

My blue eyed angel

By |2017-07-31T15:33:31-04:00Jun 30, 2011|Faces of Fragile X|

Louis, our beautiful son, was diagnosed with FX/autism.  He is the light of our life.  At first when we got the diagnosis it was devastating.  But we realized that just because Louis is not what [...]

Never Give Up

By |2017-07-31T15:33:30-04:00Jun 30, 2011|Faces of Fragile X|

Ryan is my 19 year old son who was diagnosed with full mutation at age 5 in 1996. Fifteen years later, I am thrilled and amazed at what Ryan has accomplished. His "Can Do" attitude and [...]

The Car Guy

By |2017-07-31T15:33:29-04:00Jun 30, 2011|Faces of Fragile X|

Spencer Shelton is a 20-year-old second-year student at Eastern New Mexico University in Roswell, NM, "the center of the alien universe," as Spencer puts it. Spencer's home is in Mesilla, NM, a 3-hour drive from [...]

The Hoeser Family

By |2017-07-31T15:33:29-04:00Jun 30, 2011|Faces of Fragile X|

Hello Fellow Fragile X Families, We are the Hoeser family. We live in Illinois. Our son Joey has Fragile X syndrome. He is now 26 yrs old. Joey has come a long way in his [...]

One of a Kind

By |2017-07-31T15:33:28-04:00Jun 30, 2011|Faces of Fragile X|

Samantha loves collecting things. Whether it's shells on a beach, or rocks on a trail, she will spend hours searching for that special prize. Many, many pencils and erasers have also been collected and are [...]

Sweet Surprise

By |2017-07-31T15:33:27-04:00Jun 30, 2011|Faces of Fragile X|

Toby just turned two at the end of May and he is a sweet and happy addition to our family. I knew I was a carrier so we chose to adopt our older sons, but [...]

Sweetness

By |2017-07-31T15:33:27-04:00Jun 30, 2011|Faces of Fragile X|

Meet Ian, 7; Avery, 5; and Benjamin, 4.  Each diagnosed with full mutation Fragile X.  Each very unique and wonderful in who they are.  Ian has come further than we ever imagined he would after [...]

A Miracle We Never Expected

By |2017-07-31T15:33:26-04:00Jun 30, 2011|Faces of Fragile X|

Peter, age 3, in the orange sweater vest, has full mutation FX with endless possibilities to achieve all that he dreams. Peter has an infectious smile and heart that could warm the Arctic. His older [...]

Masons World

By |2017-07-31T15:33:25-04:00Jun 30, 2011|Faces of Fragile X|

Mason is a happy energetic 9 year old boy. He puts a smile on anyone's face once they get to know him. He is very curious about all life around him. Mason gets in to [...]

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