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Alicia is 10 and Lucas is 5. Both full mutation. Both kids were diagnosed a few months ago. It was a hard pill to swallow but we were so glad to finally have a diagnosis. [...]

I think it is important for everyone to be the best person that they can be. It doesn't matter what your abilities are. Every person in this world has a place in it, and can [...]

I have a brother named Matt, he is 10 years old. We like to "camp"(sleep in each others room) and ride bikes together. When I get older I want to become a teacher who helps [...]

This is Caden. Or to us "Little Bit". Caden may be little and cute but he sure leaves a huge impact on people. Words can't explain what a blessing Caden is to us. God has [...]

This is a wonderful picture of me and my sister Marie DeBernardis, who came to see me over Thanksgiving of last year.

Spencer Shelton is a 20-year-old second-year student at Eastern New Mexico University in Roswell, NM, "the center of the alien universe," as Spencer puts it. Spencer's home is in Mesilla, NM, a 3-hour drive from [...]

I have three sons my two older sons are affected by FXS , Kyle is 14- he just graduated from middle school and will be attending our local high school next year. He is also [...]

Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]

Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]

Jack was diagnosed with FXS a little over ten years ago when he was just shy of his second birthday. The first signal that something was up was his lack of talking. He still can't [...]