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18 10, 2019

Estate Planning: Special Needs Planning for Individuals and Caregivers

By |2020-02-03T09:47:29-05:00Oct 18, 2019|Financial Planning, Webinar|Comments Off on Estate Planning: Special Needs Planning for Individuals and Caregivers

In this webinar, learn how to leave money and other assets for the benefit of a child with special needs without causing the child to lose important public benefits, including understanding the difference between a payback special needs trust and a third-party discretionary trust. ABLE accounts and benefits, such as SSI and Medicaid, are also discussed.

2 01, 2015

The ABLE Act Explained

By |2015-01-02T09:20:03-05:00Jan 2, 2015|2015, Advocacy Day, Keeping You Informed|Comments Off on The ABLE Act Explained

On December 19, 2014 the ABLE Act was signed into law by President Obama. ABLE was truly bipartisan, and had overwhelming support from both sides of the aisle in the House and Senate. Now that [...]

10 11, 2011

The ABLE ACT of 2011 (112th Congress)

By |2011-11-10T09:40:02-05:00Nov 10, 2011|2012|Comments Off on The ABLE ACT of 2011 (112th Congress)

Those who have participated in previous NFXF Advocacy Days and responded to prior Action Alerts know that we advocated for passage of the ABLE Act in the 111th Congress. That term ended without passage of [...]

15 10, 2015

When Can We Begin Opening ABLE Accounts?

By |2015-10-15T14:35:55-04:00Oct 15, 2015|Advocacy|Comments Off on When Can We Begin Opening ABLE Accounts?

After eight long years urging passage by the US House and Senate, the ABLE Act was signed into law by President Obama in December of 2014. But ten months later, no one has been able [...]

3 12, 2015

New ABLE Guidelines Issued

By |2015-12-03T17:35:26-05:00Dec 3, 2015|Advocacy Day|Comments Off on New ABLE Guidelines Issued

The NFXF is a participating member of the ABLE National Resource Center On Friday November 20, 2105 the US Department of Treasury and the IRS released interim guidance regarding the Stephen Beck Jr, Achieving a Better [...]

20 06, 2016

Tennessee Launches ABLE TN Program

By |2016-06-20T12:44:04-04:00Jun 20, 2016|Keeping You Informed|Comments Off on Tennessee Launches ABLE TN Program

The National Fragile X Foundation is excited to announce the State of Tennessee’s launch of the country’s second Achieving a Better Life Experience (ABLE) program. ABLE TN is a national program, offering enrollment to qualified individuals with disabilities both in Tennessee and throughout the country.

17 12, 2014

ABLE ACT Passes Senate

By |2014-12-17T08:31:13-05:00Dec 17, 2014|2015, Advocacy, Advocacy Day|Comments Off on ABLE ACT Passes Senate

WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]

3 12, 2014

ABLE Passes House

By |2014-12-03T14:59:03-05:00Dec 3, 2014|Advocacy|Comments Off on ABLE Passes House

Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]

25 04, 2012

National Call-In Day in Support of the ABLE Act , Wednesday April 25, 2012

By |2012-04-25T10:26:13-04:00Apr 25, 2012|Action Alert, Advocacy|Comments Off on National Call-In Day in Support of the ABLE Act , Wednesday April 25, 2012

The National Fragile X Foundation is co-hosting National Achieving a Better Life Experience (ABLE) Act Call-In Day on Wednesday, April 25, along with Autism Speaks, National Down Syndrome Society, Muscular Dystrophy Association, NDSC, and several [...]

9 02, 2017

The 'Asks' for NFXFAD2017

By |2017-02-09T10:24:47-05:00Feb 9, 2017|Advocacy Day|Comments Off on The 'Asks' for NFXFAD2017

In preparation for the National Fragile X Foundation's Advocacy Day 2017, we are publishing initial details on our "asks" for this year's meetings. It is our goal to provide each advocate ample time to prepare, in an effort to ease anxiety related to the day. Our asks, as always, are bipartisan and reflect the best interests of our community. Personal politics have no place in Advocacy Day so we hope each of you will come to Washington, DC prepared to share your story and fight for the needs of all those living with Fragile X.

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