9th Annual Bike to X Out – Des Moines, IA
Join the NFXF Heartland - Iowa & South Dakota as they host the 9th Bike to X Out Charity Bike Ride.
20
03, 2024
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20
03, 2024
NFXF Webinar Series – 10 Basic Financial Steps for Special Needs Caregivers
Join us for the NFXF Webinar Series - 10 Basic Financial Steps for Special Needs Caregivers with Kelly Piacenti to help caregivers get started in preparing for the financial future of their loved one with Fragile X.
19
03, 2024
The 1990’s and the NFXF Becoming a True National Organization
Thankfully, we’ve come a long way since the day when FXS was jokingly referred to as “Fragile WHATSyndrome?!” In the 1990’s, many changes were taking place as a result of the increased scientific study of Fragile X and how the growing body of knowledge was impacting the work of the Foundation.
13
03, 2024
I Have the Fragile X Premutation…Now What?— Webinar
Drs. Deborah Barbouth, Emily Allen, Reymundo Lozano, and David Hessl joined us for a one-hour Q & A discussing the Fragile X Premutation.
12
03, 2024
Sensory Symptoms and Signs of Hyperarousal in Individuals with Fragile X Syndrome
FORWARD // Researchers conducted the first comprehensive analysis of characteristics of sensory symptoms in children with FXS and their impact on families.
11
03, 2024
Grief and Bereavement Experiences of Children with Intellectual Disabilities
Researchers at the University of Maryland are looking to understand how children with intellectual disabilities grieve the loss of a loved one. Researchers are currently gathering information on how children with intellectual disabilities experience [...]
11
03, 2024
Language Learning in Children: Vocabulary Acquisition in a Meaningful Context
Do you have a 5 to 10 year old child with Fragile X syndrome? Participate in this remote research study and help researchers understand how children learn words. Researchers at the Neurodevelopmental Language and [...]
21
02, 2024
Lunch & Learn Series: Single-Dose Medication Study Results in Fragile X Syndrome
Dr. Craig Erickson joined us for a 45-minute webinar where he presented the results of a single-dose medication study in FXS and then answered questions during a moderated Q&A.
21
02, 2024
Fragile X Program at Thompson Autism and Neurodevelopmental Center, Children’s Hospital of Orange County
Learn more about the CHOC Fragile X Program, what to expect when you visit, and meet Drs. Sailaja Golla and J. Thomas Megerian.
21
02, 2024
Study: Recording the Experiences of Black and Hispanic Mothers who have Children with Fragile X Syndrome
Are you a Black or Hispanic woman raising a child with Fragile X syndrome? Researchers want to hear about your experiences. The South Carolina Family Experiences Lab is conducting 30-minute interviews to learn about [...]