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Consensus of the Fragile X Clinical & Research Consortium An Introduction to Assessing Children with Fragile X Syndrome Reading Time: 55 min.—|—Last Updated: Dec. 2021—|—First Published: June 2011—|—Download PDF Note: There [...]
Consensus of the Fragile X Clinical & Research Consortium Medications for Individuals with Fragile X Syndrome Reading Time: 190 min.—|—Last Updated: Feb. 2021—|—First Published: 2012—|—English PDF—|—Spanish PDF The [...]
Newly Diagnosed We are here to help you. When you’re ready, there is a whole community that understands what you’re going through, and will be here to provide guidance and support throughout your [...]
The aim of this study was to determine parents’ main priorities for clinical trials, at a time when the clinical trial opportunities are on the rise.
Fragile X Info Series Adult Living — Volunteering, Day Programs & Employment When looking into life after high school for your young adult, it’s important to include regular daily [...]
It looks like in many places we're back to wearing masks, or will be soon. Our family has pulled out all our favorite masks and getting used to them all over again.
Traveling with your young or adult child with Fragile X syndrome on an airplane can be very stressful for both of you. These tips are provided by parents based on their experiences with their own children. Find what works for you, your child, and your family.
Dr. Craig Erickson, director of the Cincinnati Fragile X Research and Treatment Center at the Cincinnati Children's Hospital, received his first dose of the COVID-19 vaccine tells us why it’s safe.
Consensus of the Fragile X Clinical & Research Consortium Understanding Autism Spectrum Disorder in Fragile X Syndrome Reading Time: 59 min.—|—Last Updated: Dec 2020—|—First Published: Nov 2014—|—Download PDF [...]
I like to talk about #pandemicPositive – there is plenty that has been hard(er) this year, but we have also seen lots of good. So, I polled my fellow staff members for some examples of the impact we all made this year through your support.
