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The NFXF Blog

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Masons World

By |Jun 30, 2011|

Mason is a happy energetic 9 year old boy. He puts a smile on anyone's face once they get to know him. He is very curious about all life around him. Mason gets in to [...]

The love of my life

By |Jun 30, 2011|

This is our son Hunter Wilhite, he is 9 years old. He was diagnosed with Fragile X at an early age, and we were devastated. After years of grieving and feeling sorry for ourselves, we [...]

Evyn Anderson

By |Jun 30, 2011|

Evyn is 9 and full of life. His favorite hobby is puzzles. He loves to swim and ride his bike and go to church. Life is a new adventure every day. Fragile X Syndrome is [...]

My Amazing Son

By |Jun 30, 2011|

Zac is an amazing 13 year old who can do anything he sets his mind to. He loves so unconditionally it's amazing. He was diagnosed when he was a little over 3 years old after [...]

Challenges and Triumphes of Ryan

By |Jun 30, 2011|

Ryan, 13 years old with FX, Autism and ADHD has a lot of challenges, including sensory, social awareness and other things that he really doesnt like to do. But Mom and Dad inspired him to [...]

My Three Sons

By |Jun 30, 2011|

I have three sons my two older sons are affected by FXS , Kyle is 14- he just graduated from middle school and will be attending our local high school next year. He is also [...]

Self Employed as an Entertainer

By |Jun 29, 2011|

Ben was a born entertainer. The idea of becoming a voice impressionist was suggested by many, but it wasn't until Ben's first business flopped, that he looked at the possibility seriously. He wrote down all [...]

FX Achievement

By |Jun 29, 2011|

I'm Chelsea Owens and I'm 19, soon to be 20 in September and I was diagnosed with the full mutation of FX when I was 7 years old. I'm not severely affected by it. I attended [...]

i love someone with fragile x

By |Jun 29, 2011|

I was a young mother of a beautiful baby boy name Brendan. I started noticing at a young age Brendan was not the same as other kids. He was taking a lot of meltdowns a [...]

A Tribute To My Brother

By |Jun 29, 2011|

My brother, Albert Guerrero was born on January 23, 1943 and was a treasure to our family and everyone who knew him. He was not diagnosed with Fragile X until 1988. He was diagnosed with [...]

What Do You Mean She Has Fragile X?

By |Jun 29, 2011|

Lauren was born 6 February, 2007, our firstborn, and it would have been impossible to have been prouder parents. I cried when I went to the waiting room to tell my in-laws that they had [...]