The NFXF Blog
7 Things You Didnʼt Learn About Fragile X in Biology Class
Fragile X is one of the more complicated conditions to explain, so we are sharing 7 basic facts about the biology and genetics of Fragile X
Now Enrolling! Tetra Therapeutics Shares Details of FXS Trials in a Short Video
Tetra Therapeutics Shares Details of the Now Enrolling FXS Trials in a Short Video.
NFXF Western MA and Connecticut Chapter Night Out
NFXF Western Massachusetts and Connecticut chapters host a night out
My Experience at Advocacy Day
Jaleesa Holden, NFXF Communications Manager, shares her experience as a first-time advocate at NFXF Advocacy Day 2023.
NFXF Western MA Chapter Host’s 7th Annual Hadley Cornhole Championship
NFXF Western Massachussets Chapter hosts their7th Annual Hadley Cornhole Championship fundraiser
Peer-Reviewed Medical Research Program’s FY 23 Funding Opportunities for Researchers — Webinar
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
Why is the RECONNECT trial with ZYN002 Being Conducted in Fragile X Syndrome?
Zynerba Pharmaceuticals shares why the RECONNECT trial with ZYN002 is being conducted in Fragile X syndrome
Congratulations to the 2022 NFXF Summer Scholar Recipients
We asked our 2022 NFXF-funded Randi J Hagerman Summer Scholars to summarize their summer project in a 15-minute video presentation, and here they are!
2023 Advocacy Day Asks
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine
Research Funding Opportunity from CDMRP/PRMRP for Fiscal Year 23
Announcing FY 2023 federal research funding opportunities across six award categories available for all Fragile X- associated conditions and disorders.
Study: A Family Genetic Study of Autism and Fragile X Syndrome
The Neurodevelopmental Disabilities Lab at Northwestern University is conducting a research study to learn about how the genes involved in Fragile X syndrome may play a role in language development, cognitive differences, and more.
Study: Aging in Mothers who Carry the FMR1 Premutation
The University of South Carolina is conducting a research study to learn about healthy aging in women who carry the FMR1 premutation.