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The NFXF Blog

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Let's Talk Fragile X Premutation Carriers and Health

By |Aug 4, 2015|

Fragile X premutation carriers have long expressed concern over issues they might be facing because of having the premutation. Only in recent years has research been making headway into the reality of premutation carrier issues.

Teaching Your Child to Ask for Something

By |Jul 30, 2015|

One of the most challenging things for my son, Ian, to do is ask another person (not mom or dad) for something — like a favor or request — in an appropriate way. This [...]

What’s Going on in Fragile X Public Policy?

By |Jun 29, 2015|

Updates on Appropriations The House Appropriations Committee will mark up the '16 Labor-HHS-E spending bill that was passed by the subcommittee last week. The bill includes $153 billion in discretionary funding, which is a $3.7 [...]

GA: Let 'Em Know Family Walk

By |Jun 22, 2015|

Greater Atlanta FX LEK 5K Family Walk Date: July 11, 2015 Time: 09:00 AM Location: East Cobb Park3322 Roswell Rd Marietta, GA 30068 Hosts: Greater Atlanta Fragile X Details Come join your Greater [...]

Get to Know Your Local Firefighters

By |Jun 11, 2015|

Getting to know your local firefighters can help you and your children with Fragile X syndrome in so many more ways than you think. Read about how to engage with them and how it will help your family.

2015 Summer Student Fellowship Research Fund Recipients

By |Jun 10, 2015|

This summer, the NFXF will fund four summer student research fellowships at $2,500 each through the Summer Fellowship Research Fund. Since its inception in 2000, the fund has awarded $225,000 to 90 students all focused on advancing [...]

Behavior and Fragile X Syndrome

By |Jun 3, 2015|

When discussing FXS and behavior, the focus should be on the whole person. Some behaviors may be a result of the condition, of which many are positive.

MO: Awareness Walk

By |May 6, 2015|

Fragile, Not Broken Walk for Knowledge Date: June 6, 2015 Time: 09:00 AM - 12:00 PM Location: Tillis Park9551 Litzsinger Road Ladue, MO 63124 Gloria Rogers Pavillion Hosts: Fragile X Resource Center of Missouri Cost: [...]

GA: Family Fun Day

By |May 4, 2015|

Greater Atlanta FX Family Fun Day Date: May 31, 2015 Time: 03:00 PM - 05:00 PM Location: Suwanee City Hall Park - Big Splash Pad373 Buford Highway Suwanee, GA 30024 Hosts: Greater Atlanta Fragile X [...]