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The NFXF Blog

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10 Rules of Time-Out

By |Sep 14, 2017|

I have found these 10 time-out “rules” to be the keys to success. They are based on the fundamental principles and incorporate adaptations for children with Fragile X syndrome by accommodating repetition, consistency, and predictability.

Please Donʼt Poo Poo This Article

By |Sep 14, 2017|

This is one more story about children who do not want to go poo … in the toilet. It is probably not for the faint of heart, though it does make you realize that you will do anything for your children.

Education and Fragile X Syndrome

By |Sep 14, 2017|

Children whose development is affected by Fragile X syndrome are eligible for special education services. Part C of the Individuals with Disabilities Education Act (IDEA), a federal law, provides for services to children from birth [...]

Reasons to Visit a Clinic

By |Sep 8, 2017|

While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. Examples of evaluations offered at clinics through an initial intake include: medical, [...]

Planning Your Visit to a Fragile X Clinic

By |Sep 8, 2017|

Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]

Survey: Communication with Children Unaffected by Fragile X

By |Sep 6, 2017|

University of Maryland [mpc_button preset="preset_191" url="url:https%3A%2F%2Fwww.surveymonkey.com%2Fr%2F8F8GFL6|title:Link||" font_preset="mpc_preset_62" font_color="#ffffff" font_size="12" font_line_height="1" font_transform="uppercase" font_align="inherit" title="Take the Survey" icon="fa fa-angle-right" icon_color="#ffffff" icon_size="12" icon_effect="stay-right" icon_gap="20" background_color="#00934a" border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;" padding_divider="true" padding_css="padding-top:11px;padding-right:30px;padding-bottom:11px;padding-left:40px;" margin_divider="true" margin_css="margin-top:6px;margin-right:10px;margin-bottom:4px;margin-left:10px;" hover_font_color="#ffffff" hover_icon_color="#ffffff" hover_background_color="#00934a" hover_border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;"] Hello, [...]