The NFXF Blog
The Many Ways You Raise Fragile X Awareness—Every Day!
[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]
FY18 CDC Funding
The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]
GA: Fundraiser Party
Greater Atlanta Kendra Gives Back Party Date: July 26, 2017 Time: 6:00 PM - 8:00 PM Location: Kendra Scott at Avalon 3150 1st Street Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Registration: Online Registration [...]
Purposeful Vocational Training for Your Teen or Adult Child
Suggestions from DevelopmentalFX on how to make transitions into the workplace during the high school years more valuable and comfortable for everybody.
NH: X-Strides New Hampshire 5K
X-Strides New Hampshire 5K Date: July 23, 2017 Time: 8:30 AM - 11:00 AM Location: Sabatinos Restaurant Patio1 East Broadway Derry, CA 94112 Hosts: Cost: Adult: $25 Registration in includes t-shirt, light refreshments and swag [...]
CA: X-Strides Norcal 5K
X-Strides Northern California 5K Date: July 15, 2017 Time: 9:00 AM - 2:00 PM Location: Lake Merritt 568 Bellevue Ave Oakland, CA 94610 Hosts: Fragile X Northern California Cost: Adult (ages 16 and over): $25.00 [...]
Journal of Neurodevelopmental Disorders Discusses Fragile X Research in New Articles
The Journal of Neurodevelopmental Disorders published four important articles this week which describe various steps in Fragile X research from gene discovery to potential treatment in Fragile X syndrome (FXS). FXS is one of the [...]
St. Louis Holds Its Annual Walk and Shaves Our CEO’s Head!
[mpc_image preset="preset_2" image="28100" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] June 2-3, 2017 – Members of the Fragile X Resource Center of Missouri gathered at the Celebrating Life Cake Boutique on Friday, June 2, to welcome [...]
Letter to Congress on Budgets and Healthcare
A copy of a letter sent to Congress on June 13, 2017.
Jen Newsome: Making Strides for Fragile X
Thank you to Jen Newsome of the NFXF’s Fragile X Association of Southern California. After an active role in the group, she took on a leadership role and has lead the group to provide many [...]
A Successful Fragile X Conference in Seattle
[mpc_image preset="preset_2" image="28095" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Another great conference in the Northwest Region this year hosted by Fragile X Association of WA State! It was an honor and privilege to [...]
Moms Night Out: Burgers with Buddies!
May 11, 2017 - Moms of children with Fragile X met at the Artisanal Burger Company to spend time with friends while enjoying delicious handcrafted burgers made with fresh, local ingredients. The moms, Madelene, Orna, [...]