The NFXF Blog
Making Waves for Fragile X: The 7th Annual Fishing for a Cure Fundraiser
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2023! Check out the big fish and the big smiles.
Healthcare Experiences of African American Women with a Fragile X Premutation
Authors: Andy King, Nadia Ali, Cecelia Bellcross, Fabienne Ehivet, Heather Hipp, Jessica Vaughn, Emily G. Allen An estimated 1 in 291 women carry a Fragile X premutation (PM) and there is little evidence that [...]
Emotion Dysregulation in Fragile X Syndrome
By Mya Jones Authors: Rebecca C Shaffer, Debra L Reisinger, Lauren M Schmitt, Martine Lamy, Kelli C Dominick, Elizabeth G Smith, Marika C Coffman, Anna J Esbensen Summary: A large portion of individuals with Fragile [...]
Fragile X Research and Treatment Center at the UC Davis MIND Institute
The Fragile X Research and Treatment Center at the UC Davis MIND Institute includes a treatment clinic that sees patients who are not part of their research projects.
A Fragile X Christmas!
Denny and Marcia Haugen know how to throw a party! Their December 9, 2023, second annual Fragile X Christmas party in Waverly, Iowa, was a smashing success.
Multidisciplinary Treatment of Fragile X Syndrome (FXS) — Webinar
Drs. Craig Erickson, Laura Hess, Kerrie Chitwood, and Rebecca Shaffer joined us for a one-hour Q & A discussing the benefits of a multidisciplinary team.
FORE! Fragile X Annual Golf Event Raises over $250,000 for the NFXF!
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has raised over $250,000 for the National Fragile X Foundation. Thank you Jay, Anne and Alec - and your many supporters over the years!
Dentistry for Individuals with Intellectual Disability
Many families struggle with helping their loved ones with intellectual and developmental disabilities maintain good oral hygiene. We've pulled together some helpful resources on dentistry for families and medical professionals.
10 Things Everyone Should Know About Fragile X Syndrome
The most effective way to support someone living with FXS in any setting is to maximize their focus, cooperation, and enjoyment. Here's more on the strengths and challenges for individuals with Fragile X, and how to make the most of any experience.
Fragile X-associated Tremor/Ataxia Syndrome — Webinar
Drs. Deborah Hall and Peter Todd joined us for an informative webinar on the topic of Fragile X-associated Tremor/Ataxia syndrome (FXTAS).
Publication Summary: Insight and Recommendations for Fragile X Premutation Associated Conditions from the Fifth International Conference on FMR1 Premutation
This summary gives a broad overview of the main themes discussed at the Fifth International Conference on FMR1 Premutation in early 2023.
Dr. Liz Berry-Kravis Explains Important Updates about the Tetra Trials
Learn more from Dr. Liz Berry-Kravis about the important updates to the Tetra trials to make participation easier!