The NFXF Blog
Welcome Class of 2023 Board Members
Executive Director Hilary Rosselot welcomes the incoming class of 2023 Board Members. We look forward to working together to serve the entire Fragile X community.
Study: iBehavior- A Novel Behavior Tracking App Study for individuals with Fragile X syndrome
The T-PAL Lab at the UC Davis MIND Institute is conducting a research study to learn about how we can best measure your child’s behavioral and cognitive functioning in their day-to-day life. Using an [...]
Send a Valentine E-card to Someone Xtraordinary
Give in Honor of a Loved One this Valentine's Day! Your Valentine’s Day e-card, with artwork designed by Charlye, will spread love to someone Xtraordinary!
New Fragile X Clinic in Philadelphia
Announcing a new Fragile X clinic located at Children's Hospital Philadelphia
2023 NIH Fragile X Centers of Excellence — Webinar
Hear updates about the NIH-funded Fragile X Centers of Excellence, which support research to improve the diagnosis and treatment of Fragile X syndrome and its related conditions.
NFXF and FXAA Fragile X Premutation Terminology Survey
Help the NFXF and FXAA- share your opinion of common Fragile X premutation terminology by completing this quick survey.
My Fragile X Advocacy Journey
NFXF Director of Community Empowerment, Missy Zolecki, shares her recent experience as a consumer reviewer for the Department of Defense Peer Reviewed Medical Research Program
Premutation Concerns — Presentation
Dr. Randi Hagerman discusses all of the Fragile X-associated conditions and disorders and provides strategies for some of their characteristics.
NFXF Western MA Chapter Leader Makes Connections
NFXF Western Massachussets Chapter Leader Denise Devine makes connections with Fragile X community members outside her local area
5th Annual FORE! Fragile X Golf Event
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has been an incredibly inspiring demonstration of support. Thank you Jay, Anne and Alec - and your many supporters over the years!
New Fragile X Clinic in New Orleans
Announcing a new Fragile X clinic located at Children's Hospital New Orleans which will serve the Greater Gulf South region
6th Annual Fishing for a Cure Fundraiser
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, is an example of inspiring and creative ways to raise money for Fragile X. Thank you Joey and Mitch!