Where is the Hope?
Getting a diagnosis is hard. It’s really hard. There has been nothing else like it in my life and I cannot imagine there ever will be. It made me sad … really sad.
Enter the 2017 Rare Artist Contest by EveryLife Foundation
EveryLife Foundation is holding the Rare Artist Art Contest and we encourage you to enter! All members of the rare disease community throughout the world – including patients, caregivers, family, researchers and medical professionals – are [...]
Honoring Margaret and Martin Israel with the NFXF Lifetime Achievement Award
The National Fragile X Foundation is pleased to announce that we will be honoring Margaret and Martin Israel as the recipients of the 2017 Lifetime Achievement Award. An award presentation and celebration will be held in [...]
A Fragile X Question on Jeopardy!
Yes, that's correct Fragile X syndrome was mentioned when Mike asked for "Fragile for $400" on Thursday nights episode of Jeopardy. http://youtu.be/Ujr5jhZgzvY
Memories of Joan Canel
Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in [...]
One Foot Forward: Marathoning in Honor of Two Special Christoff Guys
The Christoff and Frey families have been involved with the Fragile X community since Mitchell Christoff was diagnosed with Fragile X syndrome at age 3 back in 2002. Mitchell turns 14 in April, he enjoys [...]