On July 12, 2000, the 106th Congress designated July 22 as National Fragile X Awareness Day.
Dr. Jörg Richstein, Chairman of the Fragile X support group in Germany, stopped by our office to say hello just a few weeks ago! Today, we recognize our friends and partners [...]
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative [...]
Awareness Begins…and just keeps on spreading and spreading…with YOU! Preparing for National Fragile X Awareness Month in July, we are reminded again of how awareness happens. One person, one fundraising lemonade stand, one parent’s chat [...]
As National Fragile X Awareness Month for 2013 winds down, we want to thank everyone for making our first NFXF Let 'Em Know Virtual 5K a resounding success! With your help getting the word out [...]
Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. It happens in a variety of ways, and what is so [...]
UPDATE: Just as we were about to publish this article, we were pleased to learn that NFXF Board Member Dave Justus and his wife Joy will match another $10K in Let 'Em Know 5K donations [...]
Virtual Run/Walk for Fragile X Our mission: To raise awareness about Fragile X! We need your help to “Let ’Em Know” and make that happen! This isn’t about how fast or slow you are, instead [...]
