By Hilary Rosselot
Use our “About Me” template for back to school and work success!
Starting school and work comes with a lot of preparing–do I have everything I need, will I make new friends, and how do I explain Fragile X. While we can’t be physically be there to help with the first two, we have a solution for the third! And our solution may help with one and two as well.
Use our customizable “About Me” template to explain Fragile X and how it impacts you and/or your loved one in a school or work setting.
Complete the pages using the fillable PDF format or print it out and write in your information. We suggest adding lots of pictures to make it more interesting! This resource includes our popular 10 Things Teachers Should Know About Fragile X Syndrome and 10 Things Everyone Should Know About Fragile X Syndrome articles at the end.
We are here to help set you up for success! Let us know how your “About Me” template worked for you.
about
![Author Hilary Rosselot](https://fragilex.org/wp-content/uploads/Rosselot-Hilary-contact.jpg)
Hilary Rosselot
Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over five years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s degree in psychology, a master’s, and is a SOCRA certified clinical research professional (CCRP). She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!
learn more
Back to School Resources for Parents and Teachers | Living With FXS (fragilex.org)
Preparing to go back to school? Visit our Back to School blog post for more helpful information.
Employment Strategies and Successes | Webinar (fragilex.org)
Listen as several panelists share their employment successes and tips for employers.
Planning for Emergency Events at School
With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child's IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.
Best Practice in Educational Strategies and Curricula
Promising outcomes are continuing to develop using the cognitive phenotype to better understand how to best teach students with FXS.