NFXF, Author at National Fragile X Foundation

Western Massachusetts Hosts Rollerskating Event

By NFXF|2017-04-07T11:30:42-04:00Apr 7, 2017|Community Support Network, Western Massachusetts|

[mpc_image preset="preset_2" image="27485" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]On April 2, Western Massachusetts Fragile X hosted a rollerskating event for local families. The event was private, and to ensure [...]

MN: Annual Picnic

By NFXF|2017-04-06T22:03:55-04:00Apr 6, 2017|Events, Southern Minnesota Events|

Join Fragile X of Minnesota for a family picnic!

Will You Do Anything for Fragile X?

By NFXF|2021-02-03T10:14:47-05:00Apr 4, 2017|AnythingForFragileX|

Someone you care about lives with Fragile X. That person is your child, grandchild, brother, sister, nephew, cousin, friend, classmate or co-worker. That’s why you’re here. Today, we’re asking you if you would do #AnythingForFragileX!

Verbal Perseveration! Verbal Perseveration!

By NFXF|2023-06-14T16:16:16-04:00Mar 22, 2017|Behavior, Coffee Talk with Mouse and Tracy|

Let's discuss verbal perseveration (VP), a very typical and pervasive aspect of language in Fragile X syndrome. Does VP interfere with daily living and activities? You bet your boots it can!

KS: Fragile X Fundraising Dinner

By NFXF|2017-03-19T17:28:29-04:00Mar 19, 2017|Events, Northeast Kansas Events|

Join Northeast Kansas for their 1st Fragile X Fundraising Dinner! Good food, good times and best of all, a good cause. Don't miss this amazing opportunity!

Living Settings for Adults with FXS

By NFXF|2023-03-12T22:15:11-04:00Mar 15, 2017|Adolescents and Adults, Adulthood, FXS|

As your child grows into a young adult, you may consider independent or semi-independent living settings. There are a variety of living settings across the United States for people with developmental disabilities.

PA: Educational Conference

By NFXF|2017-03-10T11:19:56-05:00Mar 10, 2017|Events, Southeast Pennsylvania Events|

Save the date for Southeast Pennsylvania's educational conference!

WA: Fragile X Conference

By NFXF|2017-03-03T15:35:25-05:00Mar 3, 2017|Events, Seattle Events|

Join our families in the northwest for their annual Fragile X Conference, featuring Dr. Randi Hagerman and Dr. Paul Hagerman!

WA: Fragile X Conference

By NFXF|2017-08-02T13:10:38-04:00Mar 3, 2017|Events, Seattle Events|

Join our families in the northwest for their annual Fragile X Conference, featuring Dr. Randi Hagerman and Dr. Paul Hagerman!

MN: Beaver Island Brewing Event

By NFXF|2017-02-26T12:12:53-05:00Feb 26, 2017|Events, Southern Minnesota Events|

Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!

Passion for Community and Support Key to Success for Annual Conference

By NFXF|2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

Greater Atlanta Hosts Incredibly Successful Brew Fest

By NFXF|2017-02-17T11:24:22-05:00Feb 17, 2017|Community Support Network, Greater Atlanta|

With the support of their community, NFXF board members and outstanding CSN leadership, Greater Atlanta Fragile X hosted an amazingly successful Brew Fest event for the second year in a row.

Local Tournament Raises over $1,100 for NFXF

By NFXF|2023-03-16T15:13:25-04:00Feb 17, 2017|Community Support Network, Western Massachusetts|

What happens when you combine friendly competition and a campaign to raise awareness of Fragile X? Tremendous success! Western Massachusetts participated in the 2nd annual Hadley Cornhole Championship, raising awareness and over $1,100 for NFXF!

CT: 10th Annual Conference

By NFXF|2017-08-02T13:11:24-04:00Feb 12, 2017|Central Connecticut Events, Events|

Fragile X Society of Connecticut 10th Annual Conference Date: October 21, 2017 Time: Location: University of Connecticut Health Center 263 Farmington Avenue Farmington, CT 06030 Hosts: Fragile X Society of Connecticut Details Save [...]

Critical Incident Management for Mothers of Children with Fragile X Syndrome

By NFXF|2024-05-10T11:09:47-04:00Feb 9, 2017|Carriers|

Dealing with critical incidents is very important for caregivers of individuals with Fragile X syndrome (FXS), particularly biological mothers. Unfortunately, critical incidents occur frequently for many caregivers of children with FXS. Behavioral outbursts and aggression are critical incidents that take place in the home or in the community. For biological mothers of children with FXS who carry the premutation gene, there is the added predisposition to anxiety, as well as other emotional concerns (Coleman & Riley, 2014), which can amplify their response to these critical incidents.

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