When our family began our journey in the Fragile X world in 1991, I could not say that I had a lot of hope for our two boys’ future. Everything was so full of uncertainty. Questions surrounded our family’s life and what the future would hold. If I had completely given into doubt, I would have lost momentum toward attaining any kind of hope.
MySpa at the InterContinental Hotel has graciously offered discounted prices off of their massages for conference goers, and we'd like to share them with you. Because you do have time... please take advantage of our [...]
Do you plan on watching Mission to Lars with us? We'd like to get a headcount of the number of attendees, so please let us know if you're going by Friday, July 20, 2012! The [...]
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Register online before midnight tonight! After today July 11, 2012 we will be closing online registration, so make sure that you're registered! There will be limited registration available at the door, but we cannot guarantee [...]
June 2012 We’re less than a month away from setting sail for Miami so we hope you’ve already registered! If not, late online registration is still open until July 11, 2012. Afterwards, you must register [...]
Robert Miller Executive Director National Fragile X Foundation Some of you may have recently read an online commentary by nationally syndicated, Foxnews.com columnist Dr. Manny Alvarez. Not only does “Dr. Manny,” as he [...]
As we look to celebrate National Fragile X Awareness Day on July 22, we are moved by the people whose stories of hope you will glimpse below. They inspire us at the National Fragile X [...]
Jeffrey Cohen Director of Government Affairs & Advocacy During the week of June 25th I was scheduled to be in DC to attend Congressional Hearings on Seclusion and Restraint and to meet with [...]
If you're not coming to Miami, the next best thing will be to check in regularly with us, starting with www.fragilex.org, where we'll have regular updates on National Fragile X Awareness Day and conference activities, [...]
We pushed out a lot of changes to the last night. We have moved a few sessions around and restored the room information after significant changes to that. We have a few more [...]
http://vimeo.com/42276975 Because everyone deserves an adventure in their life. At the 13th International Fragile X Conference, the National Fragile X Foundation will be proud to present a very special screening of "Mission to Lars", a [...]
Roche and Seaside Therapeutics announced today that they have entered into a collaboration to develop disease modifying treatments for Fragile X syndrome (FXS) and autism spectrum disorders (ASD), both neurodevelopmental disorders
