Explore examples of recent announcements and headlines focused on treatment development in Fragile X syndrome. Presented by Elizabeth Berry-Kravis, MD, PhD, and Craig A. Erickson, MD.
Learn about research and findings from a study understanding the impact of COVID-19 and the pandemic on children with FXS.
Hilary Rosselot moderates this discussion on medications for Fragile X with an expert panel that includes Drs. Elizabeth Berry-Kravis, Craig A. Erickson, Randi J. Hagerman, Reymundo Lozano, and Nicole Tartaglia.
Dr. Lauren Schmitt, a licensed clinical psychologist with extensive training in cognitive functioning in individuals with neurodevelopmental disorders, discusses how behavioral inflexibility is likened to being stuck — a state in which the individual is unable to move on from a current behavior or thought.
Explore this premutation webinar to learn more about Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS) with our expert panel: Peter K. Todd, MD, Randi J. Hagerman, MD, David Hessl, PhD, and Dr. Deborah A. Hall, MD.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A. Join Jennifer Barber, Susan Howell, Barbara Haas-Givler, Nicole Tartaglia, Rebecca Shaffer, and Laurie Bridges.
This session discusses specific strategies to help promote and support essential social skills for those with Fragile X. Presented by Barbara Haas-Givler.
Explore this deep dive into education strategies for Fragile X syndrome. Moderated by Linda Sorensen and featuring Tracy Murnan Stackhouse and Anne Hoffmann.
This session explores ways to promote inclusivity at a young age for children with Fragile X syndrome. Presented by Jeanine Coleman, PhD.
Active sensory and body-based strategies are evidence-based to directly reduce hyperarousal, tame anxiety, and limit the impact of sensory reactivity. Presented by Tracy Murnan Stackhouse.
How you can get involved in Fragile X research, featuring Elizabeth Berry-Kravis, Craig A. Erickson, Randi J. Hagerman, David Hessl, Tracy King, Angel Wang, Jean Luan McColl, Laurie Bridges, Kara Frech, Emily Mack, Amie Milunovich, and Missy Zolecki, and moderated by Hilary Rosselot.
This family-friendly presentation focuses on considerations for school-age children with Fragile X syndrome. Presented by Kerrie Lemons Chitwood, Laura Greiss Hess, and Anne Hoffmann.
Learn how to navigate medication strategies and approaches for children with FXS. Presented by Karen Regan, RN, and Nicole Tartaglia, MD.
This presentation explores health conditions for women who carry an FMR1 premutation for Fragile X syndrome. Presented by Emily Allen, PhD.
Calling all fathers, papas, daddies, pop, and dads—Will Bridges discusses raising a child or children with Fragile X syndrome, followed by questions from the audience.
