Experts Discuss Education Strategies for Fragile X Syndrome — Panel

Moderated by Linda Sorensen, featuring Tracy Murnan Stackhouse, MA, OTR/L, and Anne Hoffmann, PhD, CCC-SLP.

Runtime: 0:53:36

About the Speaker

Linda Sorensen

Conference Director, former Executive Director at National Fragile X Foundation

Linda has been a member of the NFXF team since 2004, and served as executive director from 2004 to 2022. She has over 25 years of experience in non-profit programs, operations management, board and volunteer development. She earned a bachelor’s degree in Psychology and a masters in Adult Education and Organizational Development. She loves the company of her family and friends and enjoys golf, along with entertaining, traveling, and reading great books.

Tracy Murnan Stackhouse, MA, OTR/L

Executive Director, Co-Founder and Occupational Therapist

Tracy Murnan Stackhouse, MA, OTR is co-founder of the Developmental FX in Denver, Colorado. She is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. Tracy has a master’s degree in developmental psychology/neuroscience. She received her NDT training with Lois Bly. She is SIPT Certified and was the clinical specialist in sensory integration at The Children’s Hospital in Denver as well as the OT for the Fragile X Research and Treatment Center. Tracy continued her clinical and research work with Dr. Randi Hagerman at the UC Davis M.I.N.D. Institute during its start-up year prior to starting Developmental FX. Tracy has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, autism, fragile X and related topics.She is the lead author for the SpIRiT  & S.T.E.P.S.I. Clinical Reasoning Tools which are leading-edge evidence-based models in pediatric OT. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific And Clinical Advisory Committee, and the NFXF Advisory Council.

Anne Hoffmann, PhD, CCC-SLP.

Assistant Professor & Speech-Language Pathologist at Rush University Medical Center

Anne Hoffmann, PhD, CCC-SLP, is an assistant professor and speech-language pathologist in the Communication Disorders & Sciences, and Pediatrics departments at Rush University. Her research examines language and social communication development in individuals with neurodevelopmental disorders, especially Fragile X syndrome. Her teaching and clinical interests focus on pediatric speech and language disorders. Hoffmann completed her doctoral work at The Ohio State University and then completed her post-doctoral position in pediatrics at Rush University.