With Barbara Haas-Givler
Barbara Haas-Givler, BCBA, is the clinic director at the Geisinger Fragile X Center in Pennsylvania. She took the time to share some thoughts, tips, and methods for caregivers on supporting your child with Fragile X syndrome during special times, like the COVID-19 response. Starting with taking care of yourself first (like when the flight attendant tells you to put on your oxygen mask before helping others) to day-to-day strategies like schedules, social stories, activities, and more. Take 17 minutes to listen — it is worth your time.
Here are some additional resources:
After watching the video, please let us know if you have any questions by filling out the form below. Jayne Dixon Weber will try to answer as many as she can and/or it may forward them to Barb.
MORE COVID-19 RESOURCES
We’re Here to Help During This Extraordinary Time
LINDA SORENSEN — With most of us staying at home now, we’re committed to providing you with the most timely and meaningful educational resources we have available. This includes sharing a series of articles, video series, and webinars.
My Child is Home… Now What? Keeping a Routine — Webinar
In this webinar, Rebecca Shaffer guides us through the importance of having a routine, including providing predictability and lowering anxiety, and how to create and build your own for you and your child.
Get Moving with Special Olympics’ Fit 5
The Special Olympics is a valuable program for so many families, and the Fit 5 program can help with you and your child's daily living strategies and routines.
COVID-19: My child is home from school or work or a day program! What do I do?
Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home?