With Barbara Haas-Givler

Barbara Haas-Givler, BCBA, is the clinic director at the Geisinger Fragile X Center in Pennsylvania. She took the time to share some thoughts, tips, and methods for caregivers on supporting your child with Fragile X syndrome during special times, like the COVID-19 response. Starting with taking care of yourself first (like when the flight attendant tells you to put on your oxygen mask before helping others) to day-to-day strategies like schedules, social stories, activities, and more. Take 17 minutes to listen — it is worth your time.

Here are some additional resources:

After watching the video, please let us know if you have any questions by filling out the form below. Jayne Dixon Weber will try to answer as many as she can and/or it may forward them to Barb. 

MORE COVID-19 RESOURCES

Female Power to Fight COVID-19 with Marcia Braden

Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.

A COVID-19 Social Story from NFXF

The National Fragile X Foundation has created a social story to reflect the changing requirements that governments are enacting. There’s a lot of information — and misinformation — about COVID-19 out there, but there’s no doubt it’s impacted families in many, many ways.

How to Prepare for a Telehealth Visit

Drs Rebecca Shaffer and Ernie Pedapati tell you how to prepare for your telehealth visit, including behavioral checkups. They are with Fragile X Clinic at Cincinnati Children's Hospital. Their advice is applicable to all visits.