With Barbara Haas-Givler
Barbara Haas-Givler, BCBA, is the clinic director at the Geisinger Fragile X Center in Pennsylvania. She took the time to share some thoughts, tips, and methods for caregivers on supporting your child with Fragile X syndrome during special times, like the COVID-19 response. Starting with taking care of yourself first (like when the flight attendant tells you to put on your oxygen mask before helping others) to day-to-day strategies like schedules, social stories, activities, and more. Take 17 minutes to listen — it is worth your time.
Here are some additional resources:
After watching the video, please let us know if you have any questions by filling out the form below. Jayne Dixon Weber will try to answer as many as she can and/or it may forward them to Barb.
MORE COVID-19 RESOURCES
The COVID-19 Vaccines and Fragile X
Dr. Craig Erickson held a webinar on the COVID-19 vaccines for individuals living with Fragile X premutations and full mutations. He also covered COVID-19 vaccine safety in general.
Is the COVID-19 Vaccine Safe for Individuals with Fragile X?
Dr. Craig Erickson, director of the Cincinnati Fragile X Research and Treatment Center at the Cincinnati Children's Hospital, received his first dose of the COVID-19 vaccine tells us why it’s safe.
Survey: Share Your Experience With Telehealth and Services During COVID
Parents or caregivers of individuals with Fragile X syndrome who has received services via telehealth during the COVID-19 pandemic may be eligible to participate.
Telehealth Visits: Suggestions for Parents on How to Prepare
As the option to do telehealth visits opened up over the past six months, we have gathered information to help you make the most of your online visit for your child with Fragile X syndrome, whether they are a young child or an adult.
