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Multidisciplinary Treatment of Fragile X Syndrome (FXS) — Webinar

By Missy Zolecki|2023-12-13T13:39:54-05:00Dec 13, 2023|Premutation, Webinar|

Drs. Craig Erickson, Laura Hess, Kerrie Chitwood, and Rebecca Shaffer joined us for a one-hour Q & A discussing the benefits of a multidisciplinary team.

  • Early Check slide on engaging families in early check follow-up.

Increasing Access to Services for Families of Infants with Fragile X — Webinar Replay

By Robby Miller|2023-10-27T19:36:34-04:00Oct 2, 2022|Daily Living|

Hear an overview of how the Early Check team integrates telehealth models to provide families with the necessary information, support, surveillance, and intervention.

  • Panel discussion on young children with FXS.

Expert Panel Discussion on Young Children With FXS — Presentation

By Linda Sorensen|2023-12-20T23:56:55-05:00Jun 2, 2020|Daily Living, FXS, Webinar, Webinar Conference|

A discussion of the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, and behavioral issues. With Anne Hoffmann, Jennifer Epstein, Jeanine Coleman, and Tracy Murnan Stackhouse.

  • Barbara Haas-Givler presenting on supporting your child with Fragile X syndrome.

Supporting Your Child with Fragile X Syndrome During Special Times — Presentation

By Barbara Haas-Givler|2023-12-21T00:11:57-05:00Apr 22, 2020|Daily Living, Treatment & Strategies, Webinar, Webinar Conference|

Barbara Haas-Givler shares her tips and methods for caregivers supporting children with Fragile X syndrome, starting with taking care of yourself first.

  • Tracy Murnam Stackhouse, MA, OTR

An Unregulated Life is No Laughing Matter — Webinar

By Tracy Murnan Stackhouse|2023-06-14T16:28:02-04:00Apr 16, 2020|Daily Living, Treatment & Strategies|

Tracy Stackhouse teaches us the importance of self-regulation in individuals with Fragile X syndrome.

  • Boy using crayons

The How Toʼs of Sensory Diets in Fragile X Syndrome — Webinar

By Tracy Murnan Stackhouse|2023-06-14T16:28:19-04:00Apr 13, 2020|Treatment & Strategies, Webinar|

How To's of Sensory Diets in Fragile X Syndrome is the new video for this special time from Tracy Stackhouse from Developmental FX. A sensory diet is an occupational therapy intervention strategy devised to attain and maintain appropriate arousal states throughout each day. 

  • Child stacking Legos while playing on the floor.

My Child is Home… Now What?? Play Skills

By Rebecca Shaffer|2024-02-29T14:29:10-05:00Apr 7, 2020|Behavior, Daily Living, Webinar|

In this webinar, Rebecca Shaffer guides us through some pointers about how to build play skills while your children are at home, and some great resources for thinking through different play opportunities while they’re at home.

  • Boy with Yeti Files book, grinning

My Child Is Home… Now What? Managing Behavior

By Rebecca Shaffer|2023-06-14T16:28:55-04:00Apr 1, 2020|Behavior, Daily Living|

In this webinar, Rebecca Shaffer walks us through what your child is telling you, strategies to prevent the behavior, reinforcing good behaviors, and building new skills.

  • Rebecca Shaffer

My Child is Home… Now What? Keeping a Routine — Webinar

By Rebecca Shaffer|2023-06-14T16:29:05-04:00Mar 25, 2020|Behavior, Blog, Daily Living, Webinar|

In this webinar, Rebecca Shaffer guides us through the importance of having a routine, including providing predictability and lowering anxiety, and how to create and build your own for you and your child.

  • Webinar card for Let's Talk FXS, Autism & Behavior, hosted by Jayne Dixon Weber, featuring Tracy Stackhouse and Sarah Scharfenaker.

Letʼs Talk Fragile X Syndrome, Autism & Behavior — Webinar Replay

By Tracy Murnan Stackhouse|2023-06-14T16:29:17-04:00Sep 17, 2015|Autism, Daily Living|

Developmental FX joins us to provide insight and advice on Fragile X and its connection to autism and behavior.

About

The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more.

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