With Tracy Murnan Stackhouse
This one focuses on the importance of self-regulation in individuals with Fragile X syndrome, especially during the COVID-19 response. After watching the video, please let us know if you have any questions by filling out the form below. Jayne will try to answer as many as she can and/or it may forward them to Tracy.
MORE COVID-19 RESOURCES
Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.
The National Fragile X Foundation has created a social story to reflect the changing requirements that governments are enacting. There’s a lot of information — and misinformation — about COVID-19 out there, but there’s no doubt it’s impacted families in many, many ways.