The NFXF Blog
Start Planning Your 2012 Fundraiser Today!
With the bustle of the holiday season behind us, now is the perfect time to start planning a 2012 fundraiser! The NFXF relies on support from small events, and we look forward to assisting new [...]
(Fragile) X Marks a Life-Changing Spot
Source: Department of Defense: Congressionally Directed Medical Research Programs Andrew Selinger The dream of every parent is for each of their children to be happy and healthy. For Andrew Selinger, that dream is bittersweet. His [...]
How Do You Say I Love You?
We have a special little project just around the corner and need your help! We all show and say I love you in many different ways - We want to see how you and your [...]
Welcome to Your New National Fragile X Foundation Website!
We know from years of feedback that the website serves as a useful and important resource for many newly diagnosed individuals and families as well as longtime members of the Fragile X community. Early in [...]
Oh No They Didn’t! NFXF Launches New Website, Logo and First Brand Tagline
FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on Fragile X syndrome, launched its new website today. The site, fragilex.org, [...]
Study of Fragile X Treatment Preferences
RTI International RTI International{{1}}, an independent, nonprofit research organization, is conducting an important study. The purpose of this study is to better understand the views of people who provide care to a son or [...]
The Flu and Fragile X Syndrome
MMWR Article: Severe Influenza Among Children and Young Adults with Neurologic and Neurodevelopmental Conditions — Ohio, 2011 CDC published a new report in MMWR: “Severe Influenza Among Children and Young Adults with Neurologic and Neurodevelopmental [...]
The 2012 Federal Budget: What it Means for Fragile X Programs and Funding
Good news! The 2012 federal budget process has finally concluded, and Fragile X has emerged from the process with federal funding and programs intact. This was only because of the relationships we’ve nurtured and grown [...]
Focus on Fundraisers: December
2011 Annual Fund Since 1984, the NFXF has made it a goal to always be looking forward. Whether we are providing support and information for a newly diagnosed family, advocating each year for federal funding [...]
Help us reach our goal!
Thanks to our generous and loyal supporters, we are currently ahead of schedule to reach our goal for the 2011 Annual Fund! If you have not yet donated, you can help us reach 2012 [...]
Introducing the Keeping All Students Safe Act
Senator Tom Harkin (D-IA), Chairman of the Senate Health, Education, Labor and Pensions Committee, introduced the Keeping All Students Safe Act, a bill to protect students from ineffective and dangerous seclusion and restraint practices in [...]
Welcome Sharon Kidd to our team
We'd like to welcome Sharon Kidd, PhD to our team at the NFXF. Sharon joined us a few weeks ago and will serve as the National Coordinator of the Fragile X Clinical & Research Consortium's [...]