The NFXF Blog
Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)
NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]
Lesson Planning Guide
Download the Lesson Planning Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help [...]
Vanderbilt: Fragile X/Angelman Syndrome Study
Vanderbilt University Medical Center [mpc_image image="28431" padding_divider="true" padding_css="padding-bottom:20px;" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Do you have an adolescent child diagnosed with Fragile X syndrome or Angelman syndrome? We Need: Either two females, or [...]
CO: Food & Drink Fundraiser
Fundraiser ar Brewability Lab Bar Date: August 5, 2017 Time: 4:00 PM - 9:00 PM Location: Brewability 12445 E. 39th Ave #314 Denver, CO 80239 Hosts: Colorado Fragile X Details Brewability Lab was [...]
CO: Fragile X Support Group
Colorado Fragile X Support Group Date: August 26, 2017 Time: 10:00 AM Location: Children's Hospital Colorado 13123 E 16th Ave Aurora, CO 80045 We will meet in the main hospital cafeteria, in the back. It [...]
CO: Awareness Event
Raise Awareness for Fragile X Syndrome Date: July 15, 2017 Time: Location: We Rock the Spectrum Kids Gym 8601 W Cross Dr. Ste B6-2 Littleton, CO 80123 Hosts: Colorado Fragile X We Rock the Spectrum [...]
CA: North San Diego Family Picnic
North San Diego Family Picnic Date: July 29, 2017 Time: 11:00 AM Location: Sunset Park909 Puesta Del Sol San Marcos, CA 920278 We will meet by the basketball courts. Hosts: North San Diego [...]
The Many Ways You Raise Fragile X Awareness—Every Day!
[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]
FY18 CDC Funding
The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]
GA: Fundraiser Party
Greater Atlanta Kendra Gives Back Party Date: July 26, 2017 Time: 6:00 PM - 8:00 PM Location: Kendra Scott at Avalon 3150 1st Street Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Registration: Online Registration [...]
Purposeful Vocational Training for Your Teen or Adult Child
Suggestions from DevelopmentalFX on how to make transitions into the workplace during the high school years more valuable and comfortable for everybody.
NH: X-Strides New Hampshire 5K
X-Strides New Hampshire 5K Date: July 23, 2017 Time: 8:30 AM - 11:00 AM Location: Sabatinos Restaurant Patio1 East Broadway Derry, CA 94112 Hosts: Cost: Adult: $25 Registration in includes t-shirt, light refreshments and swag [...]