The NFXF Blog
Planning Your Visit to a Fragile X Clinic
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]
Early Intervention for Infants and Toddlers with Fragile X Syndrome
The Early Intervention Process The Early Intervention Program for Infants and Toddlers with Disabilities is the program known as Part C of the Individuals with Disabilities Education Act (IDEA). It is also known as [...]
Survey: Communication with Children Unaffected by Fragile X
University of Maryland [mpc_button preset="preset_191" url="url:https%3A%2F%2Fwww.surveymonkey.com%2Fr%2F8F8GFL6|title:Link||" font_preset="mpc_preset_62" font_color="#ffffff" font_size="12" font_line_height="1" font_transform="uppercase" font_align="inherit" title="Take the Survey" icon="fa fa-angle-right" icon_color="#ffffff" icon_size="12" icon_effect="stay-right" icon_gap="20" background_color="#00934a" border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;" padding_divider="true" padding_css="padding-top:11px;padding-right:30px;padding-bottom:11px;padding-left:40px;" margin_divider="true" margin_css="margin-top:6px;margin-right:10px;margin-bottom:4px;margin-left:10px;" hover_font_color="#ffffff" hover_icon_color="#ffffff" hover_background_color="#00934a" hover_border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;"] Hello, [...]
Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)
NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]
Lesson Planning Guide
Download the Lesson Planning Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help [...]
Vanderbilt: Fragile X/Angelman Syndrome Study
Vanderbilt University Medical Center [mpc_image image="28431" padding_divider="true" padding_css="padding-bottom:20px;" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Do you have an adolescent child diagnosed with Fragile X syndrome or Angelman syndrome? We Need: Either two females, or [...]
CO: Food & Drink Fundraiser
Fundraiser ar Brewability Lab Bar Date: August 5, 2017 Time: 4:00 PM - 9:00 PM Location: Brewability 12445 E. 39th Ave #314 Denver, CO 80239 Hosts: Colorado Fragile X Details Brewability Lab was [...]
CO: Fragile X Support Group
Colorado Fragile X Support Group Date: August 26, 2017 Time: 10:00 AM Location: Children's Hospital Colorado 13123 E 16th Ave Aurora, CO 80045 We will meet in the main hospital cafeteria, in the back. It [...]
CO: Awareness Event
Raise Awareness for Fragile X Syndrome Date: July 15, 2017 Time: Location: We Rock the Spectrum Kids Gym 8601 W Cross Dr. Ste B6-2 Littleton, CO 80123 Hosts: Colorado Fragile X We Rock the Spectrum [...]
CA: North San Diego Family Picnic
North San Diego Family Picnic Date: July 29, 2017 Time: 11:00 AM Location: Sunset Park909 Puesta Del Sol San Marcos, CA 920278 We will meet by the basketball courts. Hosts: North San Diego [...]
The Many Ways You Raise Fragile X Awareness—Every Day!
[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]
FY18 CDC Funding
The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]