Parents Night Out — Arlington Heights, Ill.
The NFXF Greater Chicago Chapter organized a night out at a local restaurant on September 9, 2023. Attendees enjoyed delicious food, shared experiences, and discussed challenges and strategies. Chapter leader Dawn Brown shared, “It was very nice, and it was the best turnout we have had!”
Thank you to the NFXF Greater Chicago Chapter for organizing and hosting this local event to provide opportunities for the Fragile X community to connect!
Greater Chicago X Strides Walk — Glenview, Ill.
The NFXF Greater Chicago Chapter participated in NFXF’s X Strides in July. They organized an event for members of the Fragile X community to come together on July 22, 2023. The 40 attendees casually walked a 1.5-mile loop at Gallery Park and then enjoyed the playground and splash pad. Everyone loved the delicious snacks and drinks, and a morning filled with connection and conversation!
Thank you to the NFXF Greater Chicago Chapter for providing opportunities for families living with Fragile X to connect!
about
Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.
learn more
DOD grant awarded for a FXTAS trial
PureTech Health has been awarded a DOD grant of up to $11.4 million from the DOD for their trial of LYT-300, oral formulation of allopregnanolone, in people with Fragile X-associated tremor/ataxia syndrome (FXTAS).
A Reflection on the CEO Commission’s 2023 Hill Day
NFXF Board Member Jed Seifert recently represented the NFXF at the CEO Commission's Hill Day. Jed shares his reflections on this powerful experience.