Opportunities for Families Archives | Page 5 of 9

Research: UCD Language Intervention in Treatment for FXS

By NFXF|2017-04-20T22:38:13-04:00Apr 20, 2017|Opportunities for Families, Research|

UC Davis MIND Institute [mpc_image preset="preset_2" image="11147" margin_divider="true" margin_css="margin-bottom:15px;" image_size="full" force_fullwidth="true" image_opacity="100" effect="none" image_hover_opacity="100" overlay_background="rgba(255,255,255,0.35)" overlay_enable_lightbox="true" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="900" animation_in_delay="300"] Now Recruiting Research Participants: Combining Lovastatin and a Parent-Implemented Language Intervention in [...]

Research: Memory Study in Children/Youth

By NFXF|2017-04-13T13:38:55-04:00Apr 13, 2017|Opportunities for Families|

Researchers at the University of Alberta’s Department of Pediatrics and Stollery Hospital are completing a study, looking at memory in children with a neurodevelopmental disorder or typical development. [...]

Research: A Cognitive Test Battery for Intellectual Disabilities

By NFXF|2017-09-11T15:41:24-04:00Apr 13, 2017|Opportunities for Families|

National Institutes of Health A Study Funded by the National Institutes of Health The purpose of this research is to explore whether certain types of intellectual or cognitive tests are reliable, valid and [...]

Journey of Fathers Following their Child’s Fragile X Diagnosis

By NFXF|2017-01-17T11:08:59-05:00Jan 17, 2017|Opportunities for Families, Research|

You are invited to participate in an online research survey to investigate the journey of fathers, following their child’s Fragile X diagnosis and focusing on their support-seeking behaviors.

Research: Non-Targeted Fragile-X Carrier Testing: Implications for Reproductive Decisions

By NFXF|2017-01-09T11:02:52-05:00Jan 9, 2017|Opportunities for Families, Research|

This study examines women’s experiences with Fragile X carrier screening in the United States. The purpose of our research is to determine how women are being offered carrier screening for Fragile X, when they are offered screening and which healthcare professionals are responsible for returning their results. The study entails interviews with women who have undergone Fragile X carrier screening in the last six months.

University of Alberta: Memory Study in Children/Youth

By NFXF|2016-12-28T11:29:16-05:00Dec 28, 2016|Opportunities for Families, Research|

Researchers at the University of Alberta's Department of Pediatrics and Stollery Hospital are completing a study looking at memory in children with a neurodevelopmental disorder or typical development.

Parent Perspectives on Rapport in Speech-Language Treatment for Children

By NFXF|2016-09-12T11:04:53-04:00Sep 12, 2016|Opportunities for Families, Research|

The purpose of this study is to explore parent perceptions of clinician-client relationships in speech-language treatment for children. We believe that the development of collaborative working relationships between speech-language pathologists, children receiving treatment, and their parents are important aspects of the treatment process. We are working to develop tools to accurately measure the strength of these relationships.

Behavioral Treatment of Disruptive Behaviors in Boys with Fragile X Syndrome

By NFXF|2016-09-08T13:26:43-04:00Sep 8, 2016|Opportunities for Families|

Stanford School of Medicine is seeking boys, ages three and ten years, to participate in a study evaluating behavioral treatments for disruptive behaviors.

Research Study of Children with Fragile X Syndrome at Georgia State University

By NFXF|2016-08-01T12:26:47-04:00Aug 1, 2016|Opportunities for Families|

If your child is between six and 17 years of age, Georgia State University is interested in studying their walking pattern and bone mineral density.

Brief Social Skills Intervention for Fragile X Syndrome

By NFXF|2016-06-15T12:52:29-04:00Jun 15, 2016|Opportunities for Families, Research|

The Translational Applied Behavior Analysis Laboratory at Stanford University is seeking boys with FXS to participate in an innovative new research study involving a brief social skills intervention and MRI brain imaging.

Research: Experiences and Decision-Making Processes

By NFXF|2016-06-09T10:46:38-04:00Jun 9, 2016|Opportunities for Families, Research|

The focus of this research is on understanding how couples communicate about genetic testing in regards to their children and how they decide about future children knowing there is a potential or actual genetic risk.

Purdue University Phenotype Survey

By NFXF|2016-05-06T10:07:44-04:00May 6, 2016|Opportunities for Families, Research|

Little is known about the early psychosocial and family development of young children with neurodevelopmental disorders. The goal of this study is to partner with families affected by these conditions to better understand children’s individualized strengths and needs.

Preschool Word Learning Study

By NFXF|2016-01-11T23:15:17-05:00Jan 11, 2016|Opportunities for Families|

UC Davis MIND Institute If you have a son with Fragile X syndrome between 36 and 66 months of age, you and your child are invited to participate in a research study being conducted [...]

Study: Racial and Ethnic Minority Fragile X Survey

By NFXF|2015-11-13T14:26:43-05:00Nov 13, 2015|Opportunities for Families|

Georgianna Baker-Gay of Capella University Dear Families, You are invited to take part in a Fragile X syndrome (FXS) study for racial and ethnic minority children and families by taking an online survey. The [...]

Diagnosis of Fragile X Syndrome: A Pre- and Post-Diagnosis Comparison of Carrier Mothers' Emotional and Support Experiences

By NFXF|2015-10-28T10:57:43-04:00Oct 28, 2015|Opportunities for Families|

University of Maryland student Amanda Catchings Purpose of Study To better understand the emotional experiences and experiences with support systems of mothers who are carriers of Fragile X syndrome and have had a child [...]