How Common are Medical Problems in Fragile X Syndrome?

By |2024-05-07T13:44:21-04:00Oct 30, 2014|FXCRC and Clinics|

Are medical problems more common in individuals with Fragile X syndrome than in typically developing children? To help answer that question and guide pediatricians in caring for individuals with FXS, clinicians from the FXCRC set out to determine the most common medical problems found in individuals with FXS.

News from the FORWARD Project!

By |2014-08-15T11:29:57-04:00Aug 15, 2014|FXCRC and Clinics|

This project was funded by a CDC cooperative agreement with Dr. Ted Brown (#1U19DD000753-01). Disclaimer: The findings and conclusions in this report are those of the authors and do not necessarily represent the official position [...]

NFXF Founder Receives Distinguished Scholarly Public Service Award

By |2014-05-01T12:25:32-04:00May 1, 2014|FXCRC and Clinics, Keeping You Informed|

"I can think of no one more deserving of this honor. Although a physician and scientist, Randi is a public servant in the true sense of the title. Her passion to bring positive change to the lives of individuals and families impacted by Fragile X and autism sets the bar. We at the National Fragile X Foundation are proud to carry on the work that Randi started 30 years ago when she established the NFXF. The families we serve sleep better at night knowing that Randi is on the job. We offer our most heartfelt congratulations and thanks to Randi on the occasion of this well deserved award." said Jeffrey Cohen, NFXF interim executive director.

The Fragile X Clinic: What Does It Mean For You?

By |2019-04-25T09:40:29-04:00Apr 25, 2014|FXCRC and Clinics|

At our clinic in Boston we often hear families ask why they should go to a Fragile X clinic if they are happy with the care they are currently receiving from their local providers. The main reason is that our clinics specialize in all things Fragile X—we get you and your child. Everyone here—clinicians, genetic counselors, social workers, therapists, and all other members of the clinic—knows Fragile X syndrome (FXS).

UC Davis MIND Institute Joins Ranks of Elite US Neurodevelopmental Centers

By |2014-03-12T13:01:15-04:00Mar 12, 2014|FXCRC and Clinics, Keeping You Informed|

Congratulations to the UC Davis MIND Institute—a member of the Fragile X Clinical & Research Consortium— for being named an Intellectual and Developmental Disabilities Research Center. Only a handful of neurodevelopmental centers hold that distinction, and we’re proud to call them our friends and colleagues in the Fragile X community.

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