Please help the NFXF and the Fragile X clinics gather information about the quality of life for children with Fragile X syndrome (FXS) and their parents across the country.
One of the ways of finding out whether drugs or behavioral interventions work is whether there are changes to “quality of life” – that is, whether physical, emotional, social, school and family functioning is improved by children taking medications or being in a behavioral therapy group.
Please take about ten minutes to answer a few questions at: www.surveymonkey.com/s/ZPJBV78.
Only answer if you have a child with FXS between the ages of 5 and 17 years old. The child does not need to be on any medication or having any behavioral therapy, as we want to know generally about the functioning of children with FXS in that age group and the impact on the family.