Fragile X Premutation Issues Front and Center on the World Stage
Pictured Above: Fragile X professionals from around the world taking a mud bath, and making the sign of the X, prior to a swim in the Dead Sea, the lowest point on earth at 1,388 [...]
Southeast Pennsylvania Brings Experts for a Great Conference!
It had been a while since Fragile X Southeast Pennsylvania held an educational conference and this one did not disappoint! Approximately fifty people gathered to hear Medical, Educational and Behavioral Interventions for Fragile X. We [...]
Honoring Margaret and Martin Israel with the NFXF Lifetime Achievement Award
The National Fragile X Foundation is pleased to announce that we will be honoring Margaret and Martin Israel as the recipients of the 2017 Lifetime Achievement Award. An award presentation and celebration will be held in [...]
St. Louis Celebrates Its 25th Anniversary at the Mouse Races
The Fragile X Resource Center of Missouri hosted its 12th Annual Fragile X Mouse Races on Saturday, September 23rd. Nearly 150 guests enjoyed a fast-paced evening of Mouse Races, Mouse Roulette, and bidding on raffle [...]
Changes are Underway at the Foundation
The Board of the NFXF is very pleased to announce that it has named Linda Sorensen, our current Chief Operating Officer, as Acting Executive Director, effective immediately. Linda, who has been with the [...]
Education and Fragile X Syndrome
Children whose development is affected by Fragile X syndrome are eligible for special education services. Part C of the Individuals with Disabilities Education Act (IDEA), a federal law, provides for services to children from birth [...]
Reasons to Visit a Clinic
While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. Examples of evaluations offered at clinics through an initial intake include: medical, [...]
Planning Your Visit to a Fragile X Clinic
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]
Home Schooling and Fragile X
Whether you have decided to home school your child for a year or for an extended period, developing a curriculum can be a challenge. Start by setting goals for your child, research and experiment [...]
Early Intervention for Infants and Toddlers with Fragile X Syndrome
The Early Intervention Process The Early Intervention Program for Infants and Toddlers with Disabilities is the program known as Part C of the Individuals with Disabilities Education Act (IDEA). It is also known as [...]
Survey: Communication with Children Unaffected by Fragile X
University of Maryland [mpc_button preset="preset_191" url="url:https%3A%2F%2Fwww.surveymonkey.com%2Fr%2F8F8GFL6|title:Link||" font_preset="mpc_preset_62" font_color="#ffffff" font_size="12" font_line_height="1" font_transform="uppercase" font_align="inherit" title="Take the Survey" icon="fa fa-angle-right" icon_color="#ffffff" icon_size="12" icon_effect="stay-right" icon_gap="20" background_color="#00934a" border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;" padding_divider="true" padding_css="padding-top:11px;padding-right:30px;padding-bottom:11px;padding-left:40px;" margin_divider="true" margin_css="margin-top:6px;margin-right:10px;margin-bottom:4px;margin-left:10px;" hover_font_color="#ffffff" hover_icon_color="#ffffff" hover_background_color="#00934a" hover_border_css="border-width:2px;border-color:#00934a;border-style:solid;border-radius:5px;"] Hello, [...]
Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)
NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]
CO: Food & Drink Fundraiser
Fundraiser ar Brewability Lab Bar Date: August 5, 2017 Time: 4:00 PM - 9:00 PM Location: Brewability 12445 E. 39th Ave #314 Denver, CO 80239 Hosts: Colorado Fragile X Details Brewability Lab was [...]
GA: Fundraiser Party
Greater Atlanta Kendra Gives Back Party Date: July 26, 2017 Time: 6:00 PM - 8:00 PM Location: Kendra Scott at Avalon 3150 1st Street Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Registration: Online Registration [...]
Managing Difficult Back-to-School Transitions for Students With Fragile X Syndrome
Several strategies can help in guiding a successful transition. Though if the student changes schools, neighborhoods, or programs, additional support is required.