NFXF Archive
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The Board of the NFXF is very pleased to announce that it has named Linda Sorensen, our current Chief Operating Officer, as Acting Executive Director, effective immediately. Linda, who has been with the Foundation for almost 15 years, knows the community inside and out, and is perfectly positioned to lead the Foundation’s family-first mission of Community, Awareness, and Research. We congratulate Linda on this new position and look forward to her accomplishing great things for the Foundation.

With this change, we also announce that by mutual agreement, CEO Tony Ferlenda, will be leaving the Foundation on October 13, 2017. Under Tony’s leadership over the past three years, the Foundation celebrated many achievements, including establishing the first biobank to support Fragile X research. Tony will depart with the full gratitude of the Board for all he has accomplished. We wish him well as he moves on to new opportunities.

Please join us in congratulating Linda, and in thanking Tony for his efforts on the Foundation’s behalf.

Please feel free to contact the Executive Committee of the Board with any questions or comments at We will also be offering a Town Hall Meeting tonight to address any questions you might have. The registration information is below.

NFXF Town Hall Meeting
Sep 18, 2017 8:00 PM EDT
Click to Register