EveryLife Foundation is holding the Rare Artist Art Contest and we encourage you to enter! All members of the rare disease community throughout the world – including patients, caregivers, family, researchers and medical professionals – are [...]
North San Diego Family Picnic Date: July 29, 2017 Time: 11:00 AM Location: Sunset Park909 Puesta Del Sol San Marcos, CA 920278 We will meet by the basketball courts. Hosts: North San Diego [...]
[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]
X-Strides Northern California 5K Date: July 15, 2017 Time: 9:00 AM - 2:00 PM Location: Lake Merritt 568 Bellevue Ave Oakland, CA 94610 Hosts: Fragile X Northern California Cost: Adult (ages 16 and over): $25.00 [...]
[mpc_image preset="preset_2" image="28100" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] June 2-3, 2017 – Members of the Fragile X Resource Center of Missouri gathered at the Celebrating Life Cake Boutique on Friday, June 2, to welcome [...]
Thank you to Jen Newsome of the NFXF’s Fragile X Association of Southern California. After an active role in the group, she took on a leadership role and has lead the group to provide many [...]
[mpc_image preset="preset_2" image="28095" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Another great conference in the Northwest Region this year hosted by Fragile X Association of WA State! It was an honor and privilege to [...]
May 11, 2017 - Moms of children with Fragile X met at the Artisanal Burger Company to spend time with friends while enjoying delicious handcrafted burgers made with fresh, local ingredients. The moms, Madelene, Orna, [...]
Save the date for Southeast Pennsylvania's educational conference!
Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!
Fragile, Not Broken Walk for Knowledge Date: June 6, 2015 Time: 09:00 AM - 12:00 PM Location: Tillis Park9551 Litzsinger Road Ladue, MO 63124 Gloria Rogers Pavillion Hosts: Fragile X Resource Center of Missouri Cost: [...]
Greater Atlanta FX Family Fun Day Date: May 31, 2015 Time: 03:00 PM - 05:00 PM Location: Suwanee City Hall Park - Big Splash Pad373 Buford Highway Suwanee, GA 30024 Hosts: Greater Atlanta Fragile X [...]
Fragile X Family Brunch in the Park Date: April 25, 2015 Time: 10:00 AM - 12:00 PM Location: Desert Breeze Park660 North Desert Breeze Blvd E Chandler, AZ 85226 We will be in the Mesquite [...]
Greater Atlanta Fragile X Date Night Date: March 13, 2015 Time: 08:00 PM Location: Top Golf Entertainment10900 Westside Parkway Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Cost: Please note this social event is not [...]
Navigating Transition to Adulthood for Fragile X Families Date: February 28, 2015 Time: 08:30 AM - 01:30 AM Location: Elwyn, Inc.111 Elwyn Road Elwyn, PA 19063 Elwyn Conference Center (third floor) Hosts: Fragile X Southeast [...]
