Research

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2019 Fragile X Family Research Conference

20 travel scholarships, at $250 each, are now available! Listen to Dr. Erickson's announcement and email fragilex@cchmc.org for information. Come ready to learn more about research from FX experts and mingle with families just like [...]

By | 2019-07-10T11:31:53+00:00 Jul 20, 2019|Comments Off on 2019 Fragile X Family Research Conference

The NFXF Conference, Research Opportunities, and a Fragile X Q&A

NFXF Webinar Recap In case you don’t have time, or would prefer the information in written form, we are now providing NFXF Webinar recaps. These are summaries of the webinars, using paraphrases rather than word-for-word [...]

By | 2018-06-13T10:58:48+00:00 Jun 13, 2018|Webinar|Comments Off on The NFXF Conference, Research Opportunities, and a Fragile X Q&A

Zynerba Pharmaceuticals Announces Oral Presentation of ZYN002 Data at the 16th NFXF International Fragile X Conference in July 2018

PRESS RELEASE FROM ZYNERBA PHARMACEUTICALS Devon, PA, , April 23, 2018 — Zynerba Pharmaceuticals, Inc. (NASDAQ:ZYNE), a clinical-stage specialty neuropsychiatric pharmaceutical company dedicated to developing and commercializing innovative pharmaceutically-produced transdermal cannabinoid treatments for rare and near-rare neurological and [...]

By | 2018-04-24T12:08:17+00:00 Apr 24, 2018|International Fragile X Conference, Research|Comments Off on Zynerba Pharmaceuticals Announces Oral Presentation of ZYN002 Data at the 16th NFXF International Fragile X Conference in July 2018

MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy

The aim of the study is to examine problems with a chemical messenger called glutamate in the brain in Fragile X syndrome, and how it impacts sensory, motor and cognitive abilities and implicated structural and functional connectivity.

By | 2019-07-16T15:18:29+00:00 Apr 5, 2018|Opportunities for families, Research|Comments Off on MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy

General Guidelines for Research Recruitment Postings

General Guidelines for Research Recruitment Postings Content approved by the National Fragile X Foundation. The research is relevant to Fragile X. Appropriate/relevant approvals from the poster’s institution or governing body are noted. The announcement [...]

By | 2019-05-24T13:27:46+00:00 Jan 3, 2018|Comments Off on General Guidelines for Research Recruitment Postings

CRISPR, a New Genome Editing Tool: Could it Work for Fragile X-Associated Syndromes?

Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2500 each through the Summer Student Fellowship Research Fund. This award is meant to introduce undergraduate students, or students [...]

By | 2017-12-13T18:50:17+00:00 Dec 13, 2017|Research, Summer Student Fellowship, Summer Student Fellowship Reports|Comments Off on CRISPR, a New Genome Editing Tool: Could it Work for Fragile X-Associated Syndromes?

Rockefeller University: Potential new treatment for Fragile X targets one gene to affect many

Above: Mouse brains with Fragile X Syndrome (lower) lose the ability to regulate proteins like Brd4 (green). Photo from The Rockefeller University. A new publication in the journal Cell describes efforts by two groups at Rockefeller [...]

By | 2017-11-20T14:58:10+00:00 Nov 20, 2017|Research|Comments Off on Rockefeller University: Potential new treatment for Fragile X targets one gene to affect many
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