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Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.
Early Childhood Developmental and Educational Guidelines for Children with Fragile X Syndrome Consensus of the Fragile X Clinical & Research Consortium For all children within the early childhood age [...]
Educational Guidelines for Fragile X Syndrome Middle School and High School Consensus of the Fragile X Clinical & Research Consortium DOWNLOAD PDF [...]
Consensus of the Fragile X Clinical & Research Consortium General Educational Recommendations for Students with Fragile X Syndrome Reading Time: 38 min.—|—Last Updated: Oct. 2018—|—First Published: Aug. 2012—|—Download PDF Note: There [...]
Fragile X consensus documents, written by professionals, are available to parents/caregivers to provide FXS, FXPOI, FXTAS treatment recommendations.
Doctors, nurses, teachers, therapists, caregivers, and anyone else who works with people with Fragile X syndrome or a premutation, this is for you.
Fragile X 101 What is Fragile X Syndrome? Fragile X syndrome (FXS) is caused by a mutation of a single gene — FMR1 — on the X chromosome and is inherited genetically, often [...]
This is one more story about children who do not want to go poo … in the toilet. It is probably not for the faint of heart, though it does make you realize that you will do anything for your children.
Fragile X Syndrome Resources by Age Group Prenatal Maybe you or a family member found out they are a Fragile X carrier and are trying to get pregnant, or you [...]
